Remote Delivery of Culturally Adapted Prevent-Teach-Reinforce for Families (PRT-F) Program with Chinese American Families of Young Children with Intellectual and Developmental Disability by Jinlan Zhu A dissertation accepted and approved in partial fulfillment of the requirements for the degree of Doctor of Philosophy in Special Education Dissertation Committee: Wendy Machalicek, Chair & Advisor Stephanie Shire, Core Member Kimberly Marshall, Core Member Megan Kunze, Core Member Zhuo Jing-Schmidt, Institutional Representative University of Oregon Summer 2024 REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 2 © 2024 Jinlan Zhu REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 3 DISSERTATION ABSTRACT Jinlan Zhu Doctor of Philosophy in Special Education Title: Remote Delivery of Culturally Adapted Prevent-Teach-Reinforce for Families (PRT-F) Program with Chinese American Families of Young Children with Intellectual and Developmental Disability The prevalence of challenging behavior, such as aggression, self-injurious behavior, tantrums, and noncompliance with everyday expectations among young children with intellectual and developmental disability (IDD), is higher than the prevalence of challenging behavior for children without disabilities. Without appropriate intervention, challenging behavior tends to persist in individuals with IDD, contributing to subsequent problems in school, home, and community life, as well as negatively impacting future independence. Parent education and training programs focused on supporting parents of children with IDD to learn and use evidence- based behavioral interventions with their child contribute to improved parent strategy use and increased confidence in supporting their child’s behavior and ultimately support decreased child challenging behavior and increased appropriate adaptive behavior. Prevent, Teach, and Reinforce for Families (PTR-F) is a manualized and evidence-based positive behavior support program, including parent education and training to assist families in resolving their children’s mild to moderate severity challenging behavior in home and community settings. Few studies have empirically examined the effectiveness of PTR-F or other positive behavior support parenting programs for culturally diverse families of children with disabilities. The current study examined the efficacy and social validity of a culturally adapted and telepractice version of the PTR-F for Chinese American families of young children with IDD in the United States. The PTR-F intervention program was culturally adapted for enhanced cultural responsivity to Chinese REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 4 American families using Bernal’s Ecological Validity Model as a guiding framework and delivered remotely for improved feasibility in recruitment for the planned single-case research design study and enhanced scalability in future research. Six mothers and their children with autism spectrum disorder (ASD) participated. Two independent randomized concurrent multiple baseline designs across six parent-child dyads were used to examine the effects of the culturally adapted PTR-F intervention program when delivered by mothers on the decreased rate of target child challenging behavior. Two randomization strategies, case randomization and intervention start-point randomization, were used in this study. Each dyad was randomly to different baseline lengths ,and range-bound start point randomization was used to a priori determine the length of the baseline phase for each participant while retaining the logic of the staggered introduction of the intervention over time across parent-child dyads. Visual analysis combined with the non- parametric Tau-U and parametric magnitude of treatment effect size standardized mean difference analysis, revealed mixed results with a medium effect found for child challenging behavior in the first concurrent multiple baseline design group and small effects found in the second group. Parent perceptions of the acceptability, feasibility and effectiveness of the culturally adapted PTR-F intervention program’s goals, procedures, and outcomes were collected using standardized social validity questionnaires with the addition of open-ended responses and reported using descriptive statistics and parent responses to open-ended questions. Chinese American families of children with developmental disabilities including ASD are absent in the intervention literature. This novel examination of the effects of a culturally adapted family centered intervention on child challenging behavior suggests the promise of a culturally adapted PTR-F for Chinese American families to address their child’s challenging behavior. Implications for future research and practice are discussed. REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 5 TABLE OF CONTENTS DISSERTATION ABSTRACT ...................................................................................................... 3 LIST OF FIGURES ...................................................................................................................... 10 LIST OF TABLES ........................................................................................................................ 11 CHAPTER I INTRODUCTION ................................................................................................... 12 Prevalence and impact of challenging behavior for children with IDD ................................... 12 Evidence based practices to address challenging behavior ....................................................... 14 Behavioral parent training to prevent and address challenging behavior ................................. 17 Remote parent training to support parent mediated behavioral interventions for challenging behavior ..................................................................................................................................... 18 Chinese American families and the need for culturally adapted parent mediated interventions to prevent and address challenging behavior ............................................................................ 20 Conceptual logic model for the proposed study ....................................................................... 21 CHAPTER II LITERATURE REVIEW ...................................................................................... 24 The history of Chinese American immigrants in the United States .......................................... 24 Chinese American families’ perceptions for individuals with intellectual and developmental disability .................................................................................................................................... 26 Evidence-based parent-training for Chinese American families with intellectual and developmental disability ........................................................................................................... 27 Cultural adaptation research of parent training for Chinese American immigrant group ........ 30 REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 6 Prevent-Teach-Reinforce for families (PTR-F) ........................................................................ 33 Research purpose ...................................................................................................................... 38 Research questions .................................................................................................................... 39 CHAPTER III METHOD ............................................................................................................. 40 Participants and Setting ............................................................................................................. 40 Participants ............................................................................................................................ 40 Setting ................................................................................................................................... 53 Interventionist and setting ......................................................................................................... 54 Materials ................................................................................................................................... 54 Equipment ............................................................................................................................. 54 Software ................................................................................................................................ 55 Other materials ...................................................................................................................... 56 Experimental design .................................................................................................................. 56 Culturally adapted prevent-teach-reinforce for families (PTR-F) program .............................. 57 Language ............................................................................................................................... 58 Person .................................................................................................................................... 58 Metaphors ............................................................................................................................. 60 Content and concepts ............................................................................................................ 61 Goals ..................................................................................................................................... 67 Methods................................................................................................................................. 68 Context .................................................................................................................................. 68 REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 7 Procedures ................................................................................................................................. 71 Phase I: Pre-assessment and baseline ................................................................................... 72 Phase II: BSP Development .................................................................................................. 96 Phase III: Parent education and training ............................................................................... 99 Phase IV: BSP implementation and performance feedback ............................................... 103 Phase V: Post-assessment and data collection .................................................................... 104 Data analysis ........................................................................................................................... 110 CHAPTER IV RESULTS ........................................................................................................... 112 Visual analysis ........................................................................................................................ 112 Parents’ fidelity to implementation of BSP ........................................................................ 112 Children’s challenging behavior ......................................................................................... 114 Tau-U results for each participant data set ............................................................................. 119 First MBD group ................................................................................................................. 119 Second MBD group ............................................................................................................ 120 Standardized mean difference analysis ................................................................................... 121 Non-experimental results ........................................................................................................ 121 Child-PFA ........................................................................................................................... 121 CDQ .................................................................................................................................... 123 Social validity ..................................................................................................................... 125 Families' satisfaction with the virtual training program. .................................................... 127 CHAPTER V DISCUSSION ...................................................................................................... 128 REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 8 Summary and interpretation of results .................................................................................... 128 Experimental research questions ......................................................................................... 128 Non-experimental research questions ................................................................................. 131 Limitations .............................................................................................................................. 134 Implication for science ............................................................................................................ 137 Implications for practice ......................................................................................................... 139 Concluding remarks ................................................................................................................ 141 Appendix A Routine Based Inventory (McZhiweis, 2003) ........................................................ 143 Appendix B Child Behavior Checklist for Age 1.5-5 ................................................................. 148 Appendix C Suinn-Lew Asian Self-Identity Acculturation Scale (SL-ASIA) ........................... 153 Appendix D Child-PFA Questionnaire ....................................................................................... 157 Appendix E Confidence degree questions for families ............................................................... 162 Appendix F A-B-C data collection form .................................................................................... 163 Appendix G PTR-F Procedural Documents: Jie and his Family ................................................ 165 Appendix H PTR-F Procedural Documents: Yifan and his Family ........................................... 179 Appendix I PTR-F Procedural Documents: Zhiwei and his Family ........................................... 195 Appendix J PTR-F Procedural Documents: Linlin and her Family ............................................ 208 Appendix K PTR-F Procedural Documents: Xiaoxie and his Family ........................................ 222 Appendix L PTR-F Procedural Documents: Meisheng and his Family ..................................... 236 REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 9 Appendix M Example Data Collection Sheet for Child Participant ........................................... 249 Appendix N Training Fidelity Checklist ..................................................................................... 250 Appendix O Coaching Fidelity Checklist ................................................................................... 251 Appendix P Social Validity Questionnaire ................................................................................. 252 Appendix Q Families' satisfaction with the virtual-training program ........................................ 254 Reference .................................................................................................................................... 255 REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 10 LIST OF FIGURES Figure 1 Conceptual model of this study ...................................................................................... 22 Figure 2 Flow Chart of Procedures and Duration. ........................................................................ 71 Figure 3 Group 1 BSP Implementation Fidelity Scores for each participated parent ................ 113 Figure 4 Group 2 BSP Implementation Fidelity Scores for each participated parent ................ 114 Figure 5 The relation between parents’ fidelity to the implementation of BSP strategies and children’s challenging behavior in the first MBD group ............................................................ 117 Figure 6 The relation between parents’ fidelity to the implementation of BSP strategies and children’s challenging behavior in the second MBD group ....................................................... 118 REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 11 LIST OF TABLES Table 1 Overview of the contextual variables influencing intervention development for Chinese American families in the United States. ....................................................................................... 23 Table 2 Child Demographic Information ...................................................................................... 46 Table 3 Parent Demographic Information .................................................................................... 47 Table 4 Child Behavior Checklist for Ages 1.5-5 results for each participant ............................. 49 Table 5 The detailed results of participated parents’ SL-ASIA .................................................... 52 Table 6 Interview questions were used to explore parents’ experience of their children’s diagnosis process and their family’s perceptions about their child’s disabilities and challenging behavior ......................................................................................................................................... 61 Table 7 Cultural adaptation summary for PTR-F for Chinese immigrant family ......................... 70 Table 8 Participated children’s reinforcer information summary ................................................. 75 Table 9 Targeted Family Routine Information ............................................................................. 81 Table 10 Evidence-based strategies from the PTR-F manual for BSP ......................................... 97 Table 11 Strategies on the Behavioral Support Plan .................................................................... 98 Table 12 IOA data of challenging behavior for each participant in each phase ......................... 109 Table 13 Tau-U results for each participant in the first MBD group .......................................... 119 Table 14 Tau-U results for each participant in second MBD group ........................................... 120 Table 15 Pre-test child participation results in family activities ................................................. 122 Table 16 Parental confidence degree questions result summary ................................................ 124 Table 17 Social Validity Ratings Across Families ..................................................................... 125 Table 18 Families' satisfaction with the virtual training program .............................................. 127 REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 12 CHAPTER I INTRODUCTION This chapter provides a comprehensive problem statement that identifies the core issues to be addressed within the research and introduces the purpose of the current study and the research questions. The problem statement starts with the introduction of the prevalence and impact of challenging behavior for young children with intellectual and developmental disabilities (IDD). Next, the procedures and outcomes of common evidence-based practices (EBPs) used by professionals to address challenging behavior for children with IDD will be summarized. Third, a brief overview of the research on parent training to support caregiver implementation of EBPs to prevent and address challenging behavior for children with IDD will be provided. Finally, the unique needs of Chinese American families and the need for culturally responsive caregiver mediated interventions to prevent and address challenging behavior will be discussed. This chapter will conclude with a summary of a conceptual logic model. Prevalence and impact of challenging behavior for children with IDD The term “challenging behavior” initially promoted in North America by TASH (formally known as The Association for People with Severe Handicaps), has come to replace a number of related terms including abnormal, aberrant, disordered, disturbed, dysfunctional, maladaptive, and problem behavior (Emerson & Einfeld, 2011). In addition to an intellectual quotient below 70 and support needs in two or more domains of adaptive behavior, individuals with IDD are at increased risk for co-occurring challenging behavior (Lowe et al., 2007; Poppes et al., 2010). The prevalence of challenging behavior such as self-injurious behavior (e.g., head banging, hand biting), aggression (e.g., kicking, hitting, biting), elopement or wandering, pica, and other disruptive behavior occurs at a higher rate among children with IDD than their peers REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 13 without disabilities (Ali et al., 2014; Dekker et al., 2002; Emerson et al., 2014; Kurtz et al., 2020; O’Regan et al., 2022). Estimates vary, but approximately 50% of individuals with IDD experience some form of challenging behavior, with a smaller proportion (5 – 10%) exhibiting severe challenging behavior (Kurtz et al., 2020) with serious consequences for the individual and their families and other caregivers. Challenging behavior is more common among children with IDD with a co-occurring diagnosis of autism spectrum disorder (ASD, Dekker et al., 2002; Emerson et al., 2001; Farmer & Aman, 2011; Kurtz et al., 2020; Lundqvist, 2013). Simo-Pinatella et al. (2019) performed a systematic review and selected 20 studies to document the prevalence of challenging behavior among school-aged children with disabilities. Higher challenging behavior prevalence scores were reported for participants with ASD (94% of 84 children, Jang et al. 2011) and with ASD and ID (93.7% of 174 children, McTiernan et al. 2011). Without appropriate intervention, challenging behavior tend to persist in individuals with IDD, leading to subsequent problems in the quality of family life, school adjustment and success, and educational and vocational success as well as poorer outcomes related to independent living in adolescence and adulthood (Dunlap et al., 2006; Gavaldá & Qinyi, 2012; Green et al., 2005; Lory et al., 2020). The family acts as the key support for the child with IDD, in many cases well into adulthood (Boehm et al., 2015; McCausland & O’Donovan, 2023). As such, challenging behavior among children with IDD has an impact on their own development but also on their family’s quality of life. Having a child with IDD who engages in challenging behavior is conceptualized as a risk factor in terms of worsened family well-being, as additional stressors are placed on family relationships (i.e., among spouse, parent–child, and sibling interactions), as well as increased caregiving burden via expanded family member’s roles and responsibilities REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 14 (Gardiner & Iarocci, 2012; Gau et al., 2012; Petalas et al., 2012). Over the last several decades, a significant amount of research has been conducted to demonstrate that parents raising a child with IDD experience higher levels of parenting stress, financial burden, poorer mental health, parent well-being and quality of family life compared to other parents (Hsiao, 2018; Neece et al., 2012; Siu & Hui, 2021; Woodman et al., 2015). Children’s challenging behavior have often been selected as a critical contributor for each of these negative impacts (Hsiao, 2018; Neece et al., 2012; Siu & Hui, 2021; Woodman et al., 2015). Challenging behavior is often experienced by the family members as unpredictable, emotionally intense, and these types of behavior present physical, instructional, and/or social concerns for parents. Similarly, parental stress can negatively impact on the parent– child relationship and in turn can impact on the child’s behavior (Neece et al., 2012). For example, Staunton et al. (2023) conducted a quantitative study utilizing questionnaires to assess parental stress among 32 parents in families of children with disabilities in Ireland. They found a strong correlation between the level of parental stress and challenging behavior for children with IDD. Often, when families present to behavioral health or educational services to address concerns about their child’s challenging behavior, these behaviors have been occurring over a long period of time, occur at high frequency and/or intensity, and are difficult to modify due to the learning history and social contingencies maintaining the challenging behavior (Dunlap & Carr, 2007; Ogundele, 2018). Therefore, early intervention is crucial to address the reduction of challenging behavior in children with IDD in family home and community settings to improve the quality of family life. Evidence based practices to address challenging behavior Applied behavior analysis (ABA) and multi-tiered systems of support frameworks such as positive behavior supports (PBS) are commonly used and conceptually congruent and REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 15 systematic assessment and intervention models addressing and reducing challenging behavior. ABA is a broad, scientific discipline in which basic principles of human learning and behavior are used to design more effective environments to produce socially meaningful changes in a person’s behavior. It involves the application of behavioral principles to systematically analyze the motivating operations, antecedents and consequences contributing to the development of and maintenance of both appropriate and challenging behavior and the design of interventions that capitalize on the knowledge of these basic principles to effectively change behavior. Almost 50 years of ABA research has demonstrated that non-aversive, reinforcement-based procedures can be used to prevent and decrease the occurrence of challenging behavior if one can successfully determine the function of the behavior (i.e., why it occurs) and create interventions that address the function(s) (e.g., Carr, 1977; Carr & Durand, 1985; Horner et al., 1990; Schieltz & Berg, 2021; Sugai & Simonsen, 2020). Interventions utilize procedures such as motivating operation manipulations, stimulus control, stimulus control transfer and inhibitory control procedures, positive and negative reinforcement procedures, prompting hierarchies, shaping, and fading to promote behavior change (Cooper et al., 2020; Machalicek et al., 2021). Makrygianni et al. (2018) conducted a meta-analytic study of 29 studies spanning from 1987 to 2015, encompassing seven different countries to evaluate the effectiveness of ABA interventions for children with ASD. The results showed that ABA programs were very effective in improving child intellectual abilities; were moderately to very effective in improving the communication skills and expressive and receptive language skills of children; were moderately effective in improving IQ scores obtained by non-verbal tests, adaptive behavior, socialization, and receptive language skills, as well as improving daily living skills although the effectiveness is relatively lower than other domains. REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 16 MTSS such as school wide PBS include arrays of evidence-based strategies organized along a continuum, with low-cost, low-intensity strategies used at the foundational or universal level, and more expensive and more time intensive strategies deployed as needed at higher levels of the continuum (Tiers 2 and 3; Sugai & Horner, 2020). MTSS frameworks addressing challenging behavior include three levels: 1) universal strategies designed to promote desirable behavior for all members of a designated population (such as students on a school campus), 2) secondary strategies intended for a smaller proportion of the population that might be at higher risk, and 3) tertiary strategies, which are the most intensive and individualized practices, intended only for students whose challenging behavior have been non-responsive to Tiers 1 and 2 and/or who exhibit mild to moderate levels of challenging behavior. Research indicates MTSS can prevent challenging behavior and academic deficits from worsening and ensure that students, including those in grades preschool through 12th with the most intensive needs receive the most appropriate supports (Nitz et al., 2023; Shepley & Grisham-Brown, 2019; Van Camp et al., 2020). Shepley and Grisham-Brown (2019) reviewed 16 studies to examine the effects of MTSS in preschool settings, they found tiered support systems targeting social–emotional development was most successful. Nitz et al. (2023) also conducted a literature review to provide an overview of MTSS quality, outcomes, and characteristics in elementary education research. They included 40 international studies published between 2004 and 2020, revealing that MTSS is effective in elementary schools internationally, notably in facilitating behavior change. ABA primarily targets behavior changing and modification, whereas multi-tiered frameworks emphasize a proactive and preventive approach at the population level by providing support at different levels of intensity based on students' needs, which takes a more comprehensive approach. Over the past five decades, researchers have integrated ABA principles REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 17 and strategies into multi-tiered frameworks to develop different approaches to address different setting, such as Positive Behavior Interventions and Supports (PBIS; Dunlap & Carr, 2007; Sugai et al., 2000), schoolwide positive behavior support (SWPBS; Sailor et al., 2009; Sugai & Horner, 2006; see www.pbis.org), family-centered PBIS (Lucyshyn et al., 2018), and program- wide positive behavior support (PWPBS; Dunlap et al., 2014). Additionally, according to the Individuals with Disabilities Education Act (IDEA), when a child with an identified disability has persistent challenging behavior that interfere with their learning or that of their peers or results in a change of educational placement that totals more than 10 days, a multidisciplinary team must conduct a functional behavior assessment (FBA) and implement an individualized behavior intervention plan (IDEA, 2004). Behavioral parent training to prevent and address challenging behavior For young children with IDD who engage in challenging behavior, family members and other caregivers (e.g., childcare providers) play an important role in prevention and treatment (Binnendyk & Lucyshyn, 2009; Dunlap & Fox, 2007; Dunlap et al. 2001; McIntyre & Brown, 2013; Salomone et al., 2019; Tournier et al., 2021; Vargas Londono et al., 2023) as the child spends the majority of their time with these caregivers in family home and early childhood care settings. Children and adults with IDD who have extensive support needs require the assistance of interdisciplinary professionals and often parents and other caregivers to support their full development across adaptive behavior domains. Scholarship has emphasized the crucial role of parental involvement in enhancing the effectiveness of behavioral interventions for children with IDD. For example, parent involvement in ABA based training facilitates long-term management of challenging behavior and maintenance of improvements in functional communication and other adaptive behavior (e.g., Fettig & Barton, 2014; Fettig et al., 2015; Fisher et al., 2020; REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 18 Gerow et al., 2023; Musetti et al., 2021; Pennefather et al., 2018; Yakubova & Chen, 2023). In addition, parental involvement in behavioral support services can have positive impacts on parents’ mental health and well-being (e.g., Crnic et al., 2017; Hoyle et al., 2021; Hsiao, 2018; Tournier et al., 2021). However, Durand (2021) emphasized that the most significant predictor of later behavior problems in children was not the severity of the child's initial issues or cognitive deficits, but rather the level of parental optimism or pessimism regarding their capability to shape their child's behavior. In other words, parents with lower confidence in their ability to influence their child’s behavior were more likely to have children with more severe behavioral problems later in life. Thus, developing a comprehensive parent training program tailored to the unique needs of families with children with IDD is paramount. Such a program should aim not only to equip parents with effective strategies for managing challenging behavior but also aim to bolster their confidence and belief in their ability to enact meaningful change in their child's behavior. Remote parent training to support parent mediated behavioral interventions for challenging behavior Although EBPs prevent and address challenging behavior for children with IDD, many families and children with IDD cannot access it due to geographic location, economic reasons, travel or childcare barriers, and some other barriers including specialist shortage, especially minority children and families who are doubly impacted by specialist shortages of bilingual and bicultural parent coaches (Antezana et al., 2017; Havercamp & Bonardi, 2022; Xu et al., 2022). Telepractice is a promising and efficacious service delivery mechanism for remotely coaching caregivers through assessment and intervention for children with IDD who engage in challenging behavior in their homes which has been demonstrated across research teams and participants REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 19 (e.g., Dimian et al. 2018; Lindgren et al. 2020; Simacek et al., 2017; Sump et al. 2018; Wacker et al. 2013). Telepractice services have played a crucial role in supporting children with IDD during the COVID-19 pandemic to reduce the risks of transmitting the virus from therapist to patient or vice versa (Biggs et al., 2022; Bundy et al., 2023; Fisher et al., 2020; Gerow et al., 2023; Larsen et al., 2023; Ogourtsova et al., 2023). However, since before the COVID-19 pandemic, research has demonstrated that specialists can effectively use telecommunication technology (SMS text messages, laptops, tablets, smartphones) to deliver time intensive performance feedback to parents and teachers implementing behavioral assessments and interventions addressing challenging behavior and social communication with children with autism and other IDD (e.g., Carnett et al., 2021; Knowles et al., 2017; Kunze et al., 2021; Machalicek et al., 2016; McDuffie et al. 2013; Machalicek et al., 2009a; Machalicek et al., 2009b; Machalicek et al., 2010; McDuffie et al., 2016a; McDuffie et al., 2016b). For example, Kunze et al. (2021) conducted a single-case experimental design study to examine the effectiveness of a 12-week parent- mediated early intervention program delivered through telehealth for six mother–child dyads. The study focused on six toddlers, aged between 21 and 35 months, who were at risk for ASD. Four evidence-based ABA strategies were included in the parent-mediated early intervention package, namely modeling, prompting, reinforcement of appropriate behavior, and response interruption and redirection. The results showed that the parent-mediated play-based package increased the frequency of targeted parent strategy utilization. Additionally, there was an increase in child flexible behavior, accompanied by a decrease in child inflexible behavior, specifically in terms of higher-order restrictive and repetitive behavior and interests, observed during parent-child play. Telehealth technologies provide cost savings, efficient and timely REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 20 service delivery and improved access to care, allowing for widespread dissemination of EBPs (Snoswell et al., 2020; Sumarsono et al., 2023), which is an essential consideration when developing interventions for underserved populations such as Chinese American families of children with IDD. Chinese American families and the need for culturally adapted parent mediated interventions to prevent and address challenging behavior Improving access to EBP to prevent and address challenging behavior for non-dominant culture families is essential because the United States is a growing multilingual and multicultural country. At roughly 20 million people, Asian Americans are the third significant minority and the fastest growing racial group in the US, making up about 6% of the total population (US Census Bureau, 2021). Chinese Americans comprise the largest subgroup of a heterogeneous community of Asian Americans and Pacific Islanders (AAPI) (Pew Research Center, 2021). Chinese American families of their children with IDD face a number of unique barriers to utilization of evidence-based services to address their child’s developmental, educational, behavioral, and medical needs. These factors mainly include historical and current racism, xenophobia and related federal policies affecting Chinese Americans and other Asian Americans in the U.S. (“Chinese Exclusion Act”, 2022; Farivar, 2021; Gover et al., 2020), language (AI Shamsi et al., 2020; Castro-Hostetler et al., 2021; Chen et al., 2022), low health literacy (Chen et al., 2021; Kreps et al., 2020), unique cultural influences impacting family perceptions about children with IDD(Chen et al., 2021), structural barriers (Ruiz et al., 2022), and acculturation (Chen, 2005; Lee, 1996; Yu et al., 2016). Owing to the barriers, minority children and families prefer to seek service providers who share their cultural background to overcome these obstacles and receive more culturally sensitive and empathetic care. According to the 2023 data of total REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 21 Behavior Analyst Certification Board (BACB) certifications for race or ethnicity in the United States, White certificants comprise the largest group at 52.76%, followed by Hispanic/Latinx at 21.39%, Black at 10.93%, and Asian at 7.07%. However, there is no specific data on the number of Chinese or Chinese American background behavior analysts or other behavioral health service providers who can provide behavioral parent training to Chinese American groups in the United States. There is an urgent need to develop a culturally tailored and scalable caregiver-mediated intervention to Chinese American families to support their acquisition and effective use of research-based strategies to prevent and address their children’s challenging behavior at home and in the community. Conceptual logic model for the proposed study Figure 1 below illustrates an overview of the conceptual model for the proposed study. In the model, it is hypothesized that contextual variables such as parent background, children’s characteristics, professional’s background, family dynamic and barriers experienced in successful access to service and resource to address their child’s challenging behavior and other support needs will impact the culturally adapted behavioral parent training telehealth intervention will affect the outcome variables of interest including an increase in level of parent use of strategies, a concomitant decrease in level of child target challenging behavior and increase in level of child target adaptive behavior with subsequent decreased parenting stress, and increased parental confidence and child participation in the desired family routines. The following table shows more specific detail of the model. REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 22 Figure 1 Conceptual model of this study Table 1 provides more detail regarding the known contextual variables influencing intervention development for Chinese American families in the United States including a) parent background, b) child characteristics, c) service providers’ background, d) family dynamic, and e) barriers to access of appropriate service and resources. These culturally unique influences impact Chinese American parents’ help seeking behavior, timely access to research-based interventions meeting their family’s needs, and utilization of capacity building interventions to support their child’s development. Chinese American parents of children with IDD also understand and make meaning of their child’s disability and challenging behavior through their culturally bound worldview, experiences of acculturation, and other personal characteristics. The sociopolitical context in the United States and available services and supports in the present Contextual variables • Parent background • Child characteristics • Service providers’ background • Family dynamic • Unique barriers of access to service and resources for Chinese American families Independent variables • Culturally adapted PTR-F behavioral parent training program delivered to individual families • Telepractice delivery of culturally adapted PTR-F program Outcome variables • Parent fidelity of implementation of BSP strategies • Decreased child target challenging behavior and increased target adaptive behavior • Child participation in family routines • Parental confidence • Social validity Theoretical orientations and interventions contributing to the culturally adapted intervention 1. ABA (Cooper et al. 2020): functional analysis of the relations between environment and behavior, 2. PBS (Dunlap, 2006): multi-tiered systems of support emphasize a proactive and preventive approach by providing support at different levels of intensity, include contributions from ABA, self-determination, lifestyle change 3. Social learning theory (Bandura, 1986, 2001): parent’s experiences shape their self-efficacy and confidence, 4. Ecological Systems Theory (Bronfenbrenner, 1979): human development is influenced by multiple interacting systems including the family unit, 5. Cultural responsiveness/ awareness (Lynch & Hanson, 2004). REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 23 moment also directly impact parent’s navigation of educational, health, and other services for their child and family. Table 1 Overview of the contextual variables influencing intervention development for Chinese American families in the United States. Contextual variable Parent background Education level Employment status Prior knowledge/training experience on challenging behavior and ABA/PBIS Past experience with professionals Perceptions about disabilities and challenging behavior, parent-mediated interventions and their role/responsibility in intervention Acculturation level Children’s characteristics The severity of disabilities The severity, topography, and frequency of challenging behavior The duration at home (Homeschool? Go to school/clinic half day and half day at home? Or go to school the whole day?) Service providers’ background Ethnic/cultural background Professional background in ABA (Prior coursework or training in ABA) Prior professional experience of family-based interventions/parent training Prior training/working experience of working with diversity family Family dynamic Family structure Family relationship (grandparents, father and siblings) Family engagement Chinese American family unique barriers of accessing to service and resources Racism, xenophobia, and politics in the U.S. Structural barriers Heritage language Low Health Literacy Cultural influences: (a) Long and deep influence of Confucianism, Taoism and Buddhism, (b) Parenting style/belief, (c) Familism/Collectivism, (d) Short history of developmental disability in China, (e) Acculturation. REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 24 CHAPTER II LITERATURE REVIEW This chapter presents a comprehensive examination of various facets related to Chinese American immigrants in the United States, particularly focusing on their familial perceptions towards individuals with IDD and the efficacy of evidence-based parent-training interventions tailored for this demographic. Understanding the historical trajectory of Chinese immigration to the United States provides essential context for comprehending the socio-cultural dynamics influencing familial attitudes and behavior towards IDD within this community. Additionally, this review delves into the current landscape of research on cultural adaptation research of parent training for Chinese American immigrant group and Prevent-Teach-Reinforce for Families (PTR-F). Through synthesizing these diverse strands of literature, this chapter explores cultural adaptations of the PTR-F model for Chinese American families with IDD. This chapter will conclude with a summary of a statement of purpose and research questions of the proposed empirical investigation. The history of Chinese American immigrants in the United States Asian Americans are currently the fastest-growing major racial or ethnic group in the United States and the Chinese American (including both foreign-born and United States-born) community is the largest ethnic group among Asian Americans (U.S. Bureau of Census, 2022). The earliest groups of Chinese American immigrants migrated to the United States during the California gold rush in the 1850s, often as construction workers to help build railroads and to construct other parts of the physical infrastructure of the rapidly developing West coast (Chen et al., 2022; Office of the Historian, 2021; Voss, 2018). These early Chinese immigrants were primarily men who worked long hours of back-breaking work as laborers, often in very poor REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 25 work and living conditions, and for minimal pay, while leaving most of their families back in China (Office of the Historian, 2021). Although Chinese immigrant laborers worked under harsh conditions, they faced intense discrimination and violence from white Americans, who saw them as a threat to their jobs and way of life. The Chinese Exclusion Act of 1882, which was the first federal law to restrict immigration based on nationality, specifically targeted Chinese immigrants and effectively banned them from coming to the United States for more than 60 years (Chinese Exclusion Act, 2022). During this time, Chinese Americans who were already living in the United States faced ongoing discrimination, including declining wages, segregation, violence, and economic exclusion. They often lived in Chinatowns, isolated from the broader American society. Many of these early Chinese American laborers were able to bring some members of their families to the United States once they had earned adequate funds to repatriate with them (Chen, 2019). The newer Chinese American arrivals often found work as house servants with responsibilities including cooking, cleaning, and taking care of children, adding a more domesticated employment path to the established construction laborer vocation for arriving Chinese Americans. Importantly, these Chinese American immigrants were often quite industrious, thrifty, and entrepreneurial people who eventually began to start their own businesses, stores, and restaurants in America (Zhou & Liu, 2017). Over the past five decades, there have been increasing numbers of well-educated professionals among Chinese immigrants to the United States, reflecting a high priority for educational attainment among members of this cultural group (Hooper & Batalova, 2015). Chinese immigration to the United States has continued to increase in recent decades, with new immigrants coming for various reasons, including education and employment REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 26 opportunities. Chinese Americans comprise the largest subgroup of a heterogeneous community of Asian Americans and Pacific Islanders (AAPI) (Budiman et al., 2019). According to the Pew Research Center analysis of US Census Bureau population estimates, there were 5.4 million Chinese living in the United States and Chinese Americans were the fastest growing immigrant population living in the United States in 2019 (Budiman, 2021). Despite large numbers of Chinese in the United States for many generations, the history of research on Chinese American with IDD in comparison to other ethnic groups has been relatively short. It was not until the 1980s and 1990s that the attention of some researchers included Asian/Pacific Islander persons with disabilities (Cheng, 1990). Chinese American families’ perceptions for individuals with intellectual and developmental disability Some studies have investigated the attitudes of Asian Americans broadly towards individuals with IDD (e.g., Choi & Ostendorf, 2015; Cooc & Yang, 2017; Huer et al., 2001; Kim et al, 2021; Kim et al, 2023; Lee & Koo, 2022; Mcguire et al., 2022; Nguyen & Hughes, 2013; Truong et al., 2023; Yan et al., 2017). However, a paucity of studies exist that focus more specifically on the perceptions towards persons with IDD reported by Chinese Americans specifically (Chiang & Hadadian, 2007; Parette et al., 2004; Wang & West, 2016). This finding is problematic as all Asians do not have the same cultural practices, and the characteristics and attitudes of one cultural group cannot necessarily be generalized to others (Huang, 1993; Parette et al., 2004). The differences in families' values and beliefs and the uniqueness of each Asian ethnic group provide a compelling reason to attempt to better understand Chinese American families’ perceptions for individuals with IDD. According to Chiang and Hadadian (2007), it is a common perception that many Asian REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 27 American families hold negative attitudes toward their children with disabilities. However, Parette et al. (2004) indicated that first generation Chinese American families tended to reveal positive attitudes regarding their children's disabilities. Despite encountering significant challenges in raising their children, these Chinese American families maintained the faith that their children would continue to improve because of the rich educational and community resources available for children and parents in the United States, and the legal protections provided by the federally funded special education system in the United States. These two factors gave the families security and hope regarding their children’s disabilities. Also, it was interesting that in all the years that they had resided in the United States, these family members never saw disability as a source of shame although the concept of "face" (maintaining dignity and honor) is important in Chinese culture (Ho, 1976). Parette et al. (2004) suggested that this phenomenon can be attributed to two key factors. First, in each of these families, at least one parent had received higher education from American institutions. This educational background not only enhanced their understanding of individuals with disabilities but also deepened their knowledge of the available societal resources and legislation in the United States. Second, these parents had resided in the United States for over a decade and had worked in professional fields. Their extensive experience in American life exposed them to individuals with disabilities in various social contexts, potentially contributing to their positive perspectives regarding their own children and became part of their acculturation process. Evidence-based parent-training for Chinese American families with intellectual and developmental disability Both Parette et al. (2014) and Chiang and Hadadian (2007) highlighted that Chinese Americans valued the early intervention and other educational programs received by their REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 28 children with disabilities, regardless of whether these programs were provided through federally funded public educational agencies, health insurance or private pay outpatient clinics or in home services. Being the largest ethnic subgroup within the Asian American community, the number of Chinese American families affected by IDD may be the most commonly represented ethnic group among the various ethnic groups comprising the broader group Asian Americans. However, few intervention studies to date have specifically focused on Chinese American children with IDD (Chiang, 2014; Chiang & Hadadian, 2007; Xu et al., 2023). In December of 2023, the principal investigator ran a non-exhaustive search of peer- reviewed journal articles published between 1997 and 2023 using the electronic databases Educational Resources Information Center (ERIC), PsycINFO, Medline, Education Research Complete and Social Sciences Premium Collection databases with the combined keywords “intellectual and developmental disability” OR “autism” AND “Chinese American” OR “Chinese immigrants” only identified two studies about family centered support service (i.e., Chiang, 2014; Qi et al., 2019). Chiang (2014) conducted a pilot study using a pre-test posttest group design to examine the effectiveness of a parent education program on decreasing parenting stress and increasing parental confidence and quality of life in Chinese American parents of children with ASD in New York. A total of nine families of Chinese American children with ASD participated in a 10-week parent education program (including 10 weekly 120-min group sessions). The findings of this study revealed that after receiving the program, parents of Chinese American children with ASDs showed significant reduction in parenting stress, improvement in parental confidence, and improvement in quality of life in physical health and environment domains. The parent education program covered topics tailored to parental interests, including understanding ASDs, special education, communication and social skills, behavior management, REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 29 academics, and community resources. The program comprised lectures, group discussions, parent sharing, and information exchange. The program was led by the author, Chiang, a Chinese American with a doctoral degree in special education. Mandarin, Cantonese, and English languages were used in the program and these languages were indicated by the parents as the languages that they preferred this program to use. Similar to Chiang's (2014) study, Qi et al. (2019) undertook a pilot survey study to explore how modern online support groups can reduce the stress associated with parenting children with ASD. This survey study is not a typical training or treatment effectiveness study. Rather, this is an opinion survey study about the impact of an online social chat support group. Fifty-three Chinese American parents from the online chat group (e.g., WhatsApp, WeChat) responded to a 20-question online survey. The overall results of the pilot survey study demonstrated that the online support group was statistically positive in reducing the parental stress of Chinese American participants who had children with ASD. This mode of support can empower parents with valuable information to share and learn from each other. The pilot survey also showed that participants deeply appreciated the benefits of joining such a modern online support group and felt very comfortable with this mode of support. In conclusion, both these two studies only focused on reducing parents’ stress, neither study aimed to address and reduce challenging behavior of children with IDD. Even though most Chinese American parents accepted their children with disabilities, they have expressed difficulties in caring for them (Chiang & Hadadian, 2007; Parette et al., 2004), which is common across parents of children with IDD who have extensive support needs. They also had difficulties in managing their children’s challenging behavior (Chiang & Hadadian, 2007). Surprisingly, there has been no research to date conducted with the aim of REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 30 supporting Chinese American families or parents through parent education and coaching them with their child with IDD to prevent and address challenging behavior (Vargas Londono et al., 2023). Cultural adaptation research of parent training for Chinese American immigrant group Chinese American families of their children with IDD face a number of unique barriers to utilization of evidence-based services to address their child’s developmental, educational, behavioral, and medical needs. These factors mainly include historical and current racism, xenophobia and related federal policies affecting Chinese Americans and other Asian Americans in the United States, language, low health literacy, unique cultural influences impacting family perceptions about children with IDD, structural barriers, and degree of acculturation. There are differences in degree of acculturation among Chinese immigrants from different parts of the world, between foreign-born and American-born Chinese Americans and among different generations. These various groups differ along many lines including education and degree of exposure to spoken English. Some speak no English, and others are bilingual or multilingual. The Pew Research Center (2021) reported that nearly two-third of the Chinese population (61%) only speak English at home. 93 percent United States-born Chinese reported speaking English at home, and more than half (56%) foreign-born Chinese reported speaking a language other than English at home. In the previous paragraph, I provided just a sampling of barriers that Chinese American families faced in accessing and utilizing services in the United States. Zhu and Machalicek’s (2023) unpublished concept paper provides a comprehensive review of these barriers including the long and deep influence of Confucianism, Taoism and Buddhism, Chinese American families’ parenting style, multigenerational households in Chinese American family and the short REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 31 history of developmental disability in China. These barriers can impact the quality and effectiveness of services provided to Chinese American families and may contribute to disparities in health outcomes and quality of life. In addition, most evidence-based interventions were developed and tested in academic settings for mainstream, highly selected populations, especially, for middle-class white Americans (Kumpfer et al., 2002; West et al., 2016; Wong et al., 2015). Fewer evidence-based interventions were designed for or have been applied in non- white and minoritized populations, thus they are not reaching those populations experiencing disparate access to intervention (Chinman et al., 2017; Purnell et al., 2016; Shelton, 2021). To address these inequities, one approach is to culturally adapt original evidence-based interventions. Cultural adaptation is defined as “the systematic modification of an evidence- based treatment or intervention protocol to consider language, culture, and context in such a way that it is compatible with the client’s cultural patterns, meanings, and values” (Bernal et al., 2009, p.362). Despite the challenges and disparities faced by Chinese American immigrant families, there is a lack of culturally and linguistically appropriate services and interventions. Furthermore, my exploration of prominent academic databases specializing in education (ERIC), psychologists and psychiatrists (PsycINFO), medical and biology (Medline/Pubmed), as well as the social science and humanities disciplines (Web of Science) with a focus on research pertaining to cultural adaptation intervention in Chinese American immigrants population align with the findings of Magana et al. (2021) that, when compared to the realm of mental health research, the field of IDD is significantly lagging behind in conducting studies on culturally adapted interventions, despite persistent racial, ethnic and socioeconomic disparities in IDD treatments and supports (Magaña & Vanegas, 2021; Smith et al., 2020). REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 32 To the best of my knowledge, there is only one cultural adaptation article on parent training to address the unmet needs of Chinese immigrant families (Xu et al., 2023). Xu et al. (2023) provided the cultural adaptation process of an empirically supported parent education intervention, "Parents Taking Action" (PTA). In this study, six Chinese immigrant parents of children with autism and six providers who serve this population worked together to adapt the content and context of the intervention specifically aimed at low-income Chinese immigrant families with young children diagnosed with autism. The authors translated the materials first and organized two focus groups to discuss with Chinese immigrant parents of children with autism about the adaptation content and context parts, and coding the discussion results with Stirman et al.'s (2013) coding system. And during the adaptation process, two cultural adaptations were used, deep versus surface structure adaptation (Knight et al., 2009) and the Ecological Validity Framework (Bernal et al., 1995). The results showed that both contextual and content modifications were needed for the intervention, Chinese immigrant parents preferred a group format for the intervention and highlighted the importance of delivering services in community settings, as well as the role of both Community Health Workers and professionals in addressing the unique needs of the Chinese American immigrant population. However, this study (Xu et al., 2023) just provided the cultural adaptation process, they did not conduct a specific practice to evaluate the feasibility, acceptability, and effectiveness for the families. Clearly, culturally adapted parent-mediated interventions are lacking in the Chinese American immigrant population, additional research is needed, and more profound cultural adaptations targeting the extensive support needs of children with IDD who often have co-occurring challenging behavior may be warranted. REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 33 Prevent-Teach-Reinforce for families (PTR-F) Children with IDD are more likely to be diagnosed with a severe behavior disorder than are their typically developing counterparts (Emerson & Einfeld, 2011). Relatedly, this dual diagnosis of cognitive and behavioral impairments places additional stress, anxiety and depression on their caregivers (Baker et al., 2003; Hayes & Watson, 2013; McIntyre et al., 2006). Additionally, Rohacek et al. (2023) highlighted a well-documented bidirectional relationship between caregiver stress and challenging behavior in children with IDD, with reductions in caregiver stress associated with behavioral improvements in the child (and increased caregiver stress associated with worsening of behavior and then worsening of caregiver stress). Similarly, challenging behavior is often learned and maintained by socially mediated consequences delivered by the caregivers (Rohacek et al., 2023). Thus, modifying a child's challenging behavior often necessitates caregivers adjusting their own behavior (Karst & Van Hecke, 2012; Rohacek et al., 2023). Given the important link between parenting and child adjustment, a variety of parent education and management training interventions have been adopted from the disruptive behavior disorder treatment literature and applied to the prevention and treatment of challenging behavior in children with IDD. Parenting training has a long history of use with children with IDD who also engage in challenging behavior. Parent training is based on social learning theory, principles of operant theory and behavior modification, and tenets of developmental psychopathology. Prime manualized examples in the parent management training interventions are the Incredible Years program (IYPT; Webster-Stratton, 2015), Stepping Stones Triple P (Sanders et al. 2003), Signposts for Building Better Behavior program (Hudson et al., 2003), Research Units in Pediatric Psychopharmacology Parent Training (RUPP PT) program (Johnson REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 34 et al., 2007), Research Units in Behavioral Intervention (RUBI, RUBI Autism Network, 2015), the parent management training Oregon model (Forgatch & Patterson, 2010), and parent– child interaction therapy (PCIT; Eyberg, 1988) and positive parenting program (Triple-P; Sanders et al. 2008). PTR-F (Dunlap et al., 2017) is a detailed model, a manualized, evidence-based strategy for helping families to resolve their children’s serious challenging behavior in home and community settings. This model is an extension of the Prevent-Teach-Reinforce (PTR, Dunlap et al., 2010) model for use in elementary and middle schools and the Prevent-Teach-Reinforce for Young Children (PTR-YC, Dunlap et al., 2013) model that is designed for preschool and childcare settings. The PTR model grew out of ABA and research from PBS programs. However, the PTR-F model is different from its predecessors in two fundamental ways: 1) PTR-F was developed to be effective in typical family circumstances that do not include professional educators or behavior specialists, and 2) PTR-F has goals that include reducing the child’s challenging behavior and enhancing the overall quality of life for the entire family (Dunlap et al., 2017). In this way, it is expected that implementation of the model will help transform patterns of parent–child conflict into more positive and mutually enjoyable relationships. The user-friendly PTR-F framework includes a five-step process: (a) initiating the PTR-F process, (b) PTR-F assessment, (c) PTR-F intervention, (d) coaching, and (e) monitoring plan implementation and child progress. The PTR-F manual provides step-by-step instructions, checklists, templates, and evaluation tools that help interventionists or behavioral consultants guide caregivers to implement BIPs. PTR-F was developed and published by Dunlap et al. in 2016. Before the manual was published, Sears et al. (2013), Bailey and Blair (2015), and Argumedes et al. (2021) adapted the REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 35 school-based PTR model to examine the feasibility and potential efficacy of using the PTR model with families who have children with ASD. Two peer-reviewed articles evaluate the use of this recently manualized PTR-F model. The first peer-reviewed article was published by the book’s authors. Joseph et al. (2021) evaluated the process and outcomes of the PTR-F in the areas of the family’s level of fidelity in implementing the intervention strategies, improvement in confidence and satisfaction implementing a BSP, children’s reduction of challenging behavior and increase in desirable adaptive behavior, and social validity of the PTR-F process and outcomes. The participants were three children, all three years of age, who were diagnosed with ASD and had challenging behavior. All three children lived at home with their parents and siblings. One child was also commonly cared for by a nanny. The targeted routines during the study were morning time, leaving the house, and bedtime. This study used a withdrawal design (ABAB) where the parent-implemented BSP intervention was removed briefly and then presented again. During the second intervention phase, a researcher provided coaching and feedback to help the parents re-implement the intervention. The results showed that all families implemented the intervention appropriately, with fidelity scores of 80% or more. During intervention, the frequency of child challenging behavior decreased, and alternate replacement behavior increased. Each family reported high rates of satisfaction and increased confidence during the second intervention phase in implementing the intervention with fidelity and monitoring child progress using the behavior rating scales. Hodges et al. (2022) adapted the PTR-F in vivo format by replicating and expanding on Joseph et al.’s study. The authors replicated the PTR-F process used in the Joseph et al. (2021) study and expanded by (a) using a remote format (Zoom), (b) using electronic forms to participants, (c) didactic presentation of information during behavior intervention planning (i.e., REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 36 Step 4), (d) adapting coaching strategies due to remote format and provision of equipment (e.g., iPads, cases, Bluetooth earpieces, tripods), and (f) guiding self-reflections post-session for caregivers to inform procedures and quality improvements. The study included three children, one male and two females, between two and four years of age, with challenging behavior. Their target routines were getting ready for school in the morning, following bath time, and dinner time. This study used a single-case concurrent multiple baseline design across three families. The results suggested that parents could accurately implement the PTR-F interventions with high levels of implementation fidelity, which resulted in reducing the challenging behavior and increasing the appropriate behavior of the three participating children, therefore extending the literature. The results indicated that the PTR-F process and outcomes had high social validity. Researchers have found that culturally adapted parent training interventions to decrease the challenging behavior of children with IDD have been successful in enhancing the effectiveness and acceptability of the interventions by minority families. Vargas Londono et al. (2023) conducted a systematic review to evaluate the effectiveness of culturally adapted caregiver training programs to decrease child and adolescent’s challenging behavior; the results showed that culturally adapted interventions have consistently demonstrated substantial moderated effects on caregiver behavior, leading to a reduction in negative caregiver behavior and an increase in positive parenting practices, while also yielding significant moderation effects on decreasing challenging behavior in children and adolescents. However, the majority of the 13 studies from 1970 and 2020 examined in this systematic review were conducted in the United States with Latino/a/e/z families in Spanish. Notably, no research pertaining to Chinese immigrant families was identified within the scope of this recent systematic review and meta- analysis. In addition, studies in the systematic review and meta-analysis utilized different parent REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 37 education programs and methods (e.g., The Basic Incredible Years Parenting Intervention Parent Management Training Oregon model, Child Parent Relationship Therapy, Psychoeducation program, Parent Management Training intervention), which challenges the interpretation of findings for the sake of selecting intervention programs based on participant characteristics and presenting issues. Santiago (2018) applied the PTR-F program to Hispanic families in a thesis study, which has not been published in a refereed journal. In addition, no cultural adaptation process and specific strategies were documented within the thesis. The study involved three Hispanic families of young children with ASD between the ages of three and six years of age who participated in the 5-step PTR-F process and who implemented the PTR-F intervention plan during naturally occurring family routines. Target routines were completing the entire morning routine, getting in the shower right after waking up and going to the toilet during the morning routine, and a tooth brushing routine. A concurrent multiple-baseline across participants design was employed to examine the preliminary evidence of the efficacy of using the PTR-F for three parents and their children with ASD. The results indicated that Hispanic parents successfully implemented intervention strategies with the help of an interventionist using the PTR-F manual. All children’s alternative desirable behavior increased, and challenging behavior produced a significant amount when the PTR-F intervention was implemented by the parents. The parents reported high social validity when implementing the PTR-F intervention. In a recent update, Choi (2023) included three additional steps into the PTR-F process to explore the responsiveness for culturally and linguistically diverse families: (1) introducing the practitioner’s cultural background, (2) explicit conversation about the family’s culture and value, and (3) assessment of the BSP’s contextual fit. However, when considering the barriers faced by REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 38 culturally diverse families, relying solely on these three steps might be insufficient for a comprehensive adaptation of an intervention. Furthermore, Choi (2023) focused largely on the adaptations to the process of the PTR-F, with limited attention given to content such as language, metaphor, content, concepts, and method. This emphasis may stem from the fact that only one participant shares the same culture as Choi, being from Korea, while the remaining three participants are from Thailand and Kazakhstan. As mentioned earlier, not all Asians adhere to the same cultural practices, and despite Choi's cultural awareness and practice of cultural humility, there still existed a cultural gap between Choi and the other three families. To address these limitations, the study aims to expand Choi’s (2023) study, culturally adapt PTR-F using the Ecological Validity Model (Bernal et al., 1995) and test the feasibility and effectiveness of the culturally tailored PTR-F parent intervention when delivered remotely via telepractice to Chinese American parents of young children with IDD in the United States. Research purpose The purpose of the proposed single-case experimental study is threefold: First, to expand the literature on the efficacy of the parent-implemented PTR-F program by empirically demonstrating in a single-case research design study the effectiveness of a culturally tailored PTR-F intervention program when delivered remotely via telepractice on the a) increased fidelity of implementation of parent behavior support plan strategy use and (b) the reduction of target challenging behavior and improvement of target adaptive behavior among young children with IDD within the context of participating Chinese American families. Second, to investigate the social validity of the culturally tailored PTR-F intervention program when delivered remotely via telepractice to Chinese American families. This involved asking parents to fill out an adapted version of the social validity measures utilized in the randomized controlled trial of PTR-YC REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 39 (Dunlap et al., 2017). Finally, to investigate the impact of the culturally tailored PTR-F intervention on family quality of life through two pre- and post-assessments at the beginning and end of the program, which includes parental confidence and the involvement of children with IDD in family routines and activities. Research questions RQ1. Is there a functional relation between the implementation of the culturally adapted PTR-F parent education and coaching intervention package and decreased level of children’s target mild-moderate challenging behavior during desired family routines? RQ2. About the training: Do parents perceive the goals, procedures, and outcomes of the culturally adapted PTR-F parent training program as acceptable, feasible and effective? Do their perceptions differ for specific BSP intervention strategies? How do they perceive the components of cultural adaptation for Chinese American families of children with IDD? RQ3. About the service delivery modality: Do parents perceive the goals, procedures, and outcomes of the remote telepractice technologies used to deliver the culturally tailored PTR-F program as acceptable, feasible and effective? RQ4. How does the culturally adapted PTR-F behavioral parent training program affect children with IDD participation in family routines and activities? RQ5. How does the culturally adapted PTR-F behavioral parent training program affect parental confidence? REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 40 CHAPTER III METHOD The purpose of this chapter is to present the methodology. Information regarding the participants, setting, and materials will be provided. The screening process will be presented. Indirect and direct measurement tools and procedures will be described. Next, the baseline and coaching phases will be discussed. Finally, data analysis methods will be reviewed. Participants and Setting Participants This study included six parent-child dyads to ensure an adequate sample size for meaningful analysis within a single-case study to demonstrate a functional relation between the intervention and the dependent variables. The study aimed to recruit a wide array of families of Chinese American children with IDD, inclusive of ASD. However, the vast majority of those families contacting the interventionist reported ASD as a primary diagnosis, so no child with intellectual disability or general developmental delay was included. The children were between 3 to 5 years old and had a documented medical diagnosis of ASD. Parent-child dyad information is provided in the section below, and all participants are referred to by pseudonyms in the draft. Recruitment Procedures Participants were recruited via two Chinese social media applications, Xiaohongshu and WeChat. The interventionist searched within the social media application Xiaohongshu for relevant target users using keywords related to autism or ASD, intellectual disability, developmental delay or disability, and Chinese Americans in the United States to identify Chinese parents with children with autism living in the United States. WeChat was also used for recruitment. The interventionist shared the recruitment flyer with four Chinese friends residing in REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 41 the United States who had informal connections to the online network of Chinese American families of children with disabilities. They were asked to forward the recruitment flyer to all their potential friends in their WeChat groups and moments. Two of these friends were enrolled in a graduate program in special education, and two were working in k-12 special education settings or early childhood education settings. During the two-day recruitment period, 56 parents expressed interest in participating in the study. Specifically, 42 of them completed the survey on Qualtrics by scanning the QR code on the flyer, four parents contacted the interventionist directly via phone or text message, one parent reached out via email, and nine parents reached out via WeChat. Additionally, the interventionist contacted five Chinese immigrant mothers with autism living in the United States via Xiaohongshu. Three of them responded, but none met the inclusion criterion, as their children were over five years old. However, one of the mothers mentioned that she was part of several WeChat groups consisting of parents of children with autism and other developmental disabilities. She offered to share the recruitment flyer in these groups and with her WeChat Moments. Screening Procedures After three days of recruitment, the interventionist conducted the phone screenings with the first 21 out of the 56 interested parents. The selection was based on the principle of first come, first served. Before conducting the phone screening, the interventionist asked parents to provide verbal consent for the screening data collection. The interventionist read the verbal consent script aloud over a phone call and obtained the participant’s verbal consent to participate in the screening process. Six screening questions were asked: (a) parents’ basic characteristic questions, including “When and where were you born?” as well as “When did you move to the United States?”; (b) children’s basic characteristic questions, including the birthplace (i.e., state REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 42 and country), year of birth, and primary medical diagnosis or educational eligibility; (c) children’s challenging behavioral questions, which were assessed using the Routine Based Inventory (RBI; McZhiweis, 2003, See Appendix A) to conduct a routines-based interview addressing children’s behavior in family routines; (d) family structure information, including “How many family members are living with the child?” and “Who is the primary caregiver for the child?”, “Whether your partner or other family members in the family know you will join the training program?”, and “What’s their attitude about you attending the program?”; (e) equipment availability, such as “Do you have daily access to high-speed Internet in a private location (i.e., your home)?”, and “Have you used Zoom for a meeting before?” to know whether the parent needs technology training support; and (f) parents learning history, including “Have you received any professional guidance or support in addressing your child’s challenging behavior?”. Fourteen parents provided answers to all the screening questions that met the inclusion and exclusion criteria and were invited to the next stage of the recruitment process. Seven parents were excluded during the phone screening for various reasons, such as the age of their children, lack of necessary equipment, or previous professional guidance or support history. The 14 potential parent participants were asked to attend a 30-minute Zoom meeting after the phone call. This screening telepractice meeting included: (a) an introduction of the interventionist, which covered the educational background, work experience, and research interests, and a brief overview of the research study; (b) completion of the caregiver form of Child Behavior Checklist for ages 1 ½-5 (CBCL, Achenbach, 1991, 2001); (c) completion of the Suinn-Lew Asian Self-Identity Acculturation Scale (SL-ASIA, Suinn et al., 1992) to get more information about their acculturation level; and (d) obtaining verbal consent from participants to join this study. Due to limitations in obtaining physical signatures for telepractice research, this REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 43 research received approval from the University of Oregon Institutional Review Board to waive the signature requirement. After the Zoom meeting, nine out of 14 parents met the inclusion criteria for the research study. The remaining parents were excluded for reasons such as prior commitments (e.g., travel out of the country, surgery) or inability to meet regularly for study sessions. Six parents and their children with ASD were invited to participate, while the other three were placed on a waitlist in case of attrition. Participant Demographics. All six participants were biological mothers with their autistic children between 3 and 5 years old. Tables 2 and 3 summarize the participants’ demographic information. Dyad one: Jie and Xiaoling. Jie was a 4-year-9-month-old boy born in the United States. He was diagnosed with moderate ASD by the school district assessment team at the age of 3, following his teacher's observation that he had limited interaction with other children at school. Jie was receiving occupational therapy, physical therapy, and speech therapy services from his special education school for children aged 3 to 5 years old. Xiaoling, his mother, reported that Jie was on the ABA service waitlist and had not received any ABA service before. He takes vitamins and probiotics, and sometimes he takes Melatonin for sleep. Jie lives with his father, mother, grandparents (mother’s parents), older sister, younger sister, and aunt (mother’s sister) - a total of eight people in his family. Xiaoling was a 39-year-old female who was born in China and immigrated to the United States in 2005. Both of Jie's parents are Chinese. Xiaoling’s education level is high school, and she is currently unemployed. She reported that she is the primary caregiver for Jie at home. REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 44 Dyad two: Yifan and Minhua. Yifan was a 4-year-4-month-old boy born in the United States. He was diagnosed with ASD when he was 2 years old by his pediatrician. He was receiving occupational therapy, speech therapy services, and RBT support at school. His mother, Minhua, reported that she had a monthly meeting with his RBT supervisor, who was a BCBA, but there was no specific support for Yifan’s challenging behavior at home. He does not take any medicine currently. He lives with his mother and grandmother (his mother’s mother) in the United States, while his father and older brother live in Shanghai, China. Minhua was a 37-year- old female who was born in China. Both of Yifan’s parents are Chinese. Minhua moved to the United States in 2013 for her master’s program and now holds a green card in the United States. Her education level is a master’s degree, and she is employed full-time. She is the primary caregiver for Yifan at home, while his grandmother is mainly responsible for housework. Dyad three: Zhiwei and Xiaowei. Zhiwei was a 3-year-6-month-old boy who was born in the United States. He was diagnosed with mild ASD when he was 3 years old by the early intervention program. He was receiving early intervention service and had 20 hours of ABA service during the early intervention program. His parents also received some support from the early intervention program, but his mother reported that it did not help her. He does not take any medicine currently. He lives with his father, mother, grandmother (his father’s mother), and his young sister, making a total of 5 people in his family. Zhiwei’s mother, Xiaowei, was a 35-year- old female who was born in China. Both of Zhiwei’s parents are Chinese. Xiaowei moved to the United States in 2015 for her master’s program, and now she holds a green card. She has a master’s degree and is currently unemployed. She is the primary caregiver for Zhiwei at home, and his grandmother supports the family by taking care of Zhiwei’s younger sister. REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 45 Dyad four: Linlin and Yanting. Linlin was a 4-year-5-month-old girl who was born in the United States. She was diagnosed with ASD when she was 2.5 years old by the early intervention program. She was receiving special education in a segregated classroom in a public school along with occupational therapy, physical therapy, and speech therapy services at school. Her mother, Yanting, reported that Linlin received ABA service for more than six months but less than a year when she was 3 years old. Her mother is still looking for an ABA service for her. Yanting did not think she received any professional guidance or support in addressing Linlin’s challenging behavior at the home setting, though she had monthly meetings with the service provider during Linlin’s early intervention program. Linlin does not take any medicine currently. She lives with her father, mother, and younger brother, making a total of 4 people in her family. Yan was a 38-year-old female who was born in China. Both of Linlin’s parents are Chinese. Yanting moved to the United States in 2008 for her master’s program and now holds a green card. She has a doctoral degree and is employed full-time. She reported that she and her husband share the responsibility of caring for their children. Dyad five: Xiaoxie and Luanhong. Xiaoxie was a 4-year-7-month-old boy who was born in the United States. He was diagnosed with moderate ASD when he was 2.5 years old by an early intervention program. He was receiving occupational therapy and speech therapy services under his IEP at a special education school for children aged 3 to 5 years old. His mother reported that Xiaoxie received about three months of behavioral intervention during an early intervention program at school. He does not take any medicine currently. He lives with his father, mother, and older brother, making a total of 4 people in his family. Although his father also participated in most of the meetings for this study, due to unstable work schedules, Xiaoxie’s mother, Luanhong, was the targeted parent in this family. Luanhong was a 49-year-old REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 46 female who was born in China. Both of Xiaoxie’s parents are Chinese. Luanhong immigrated to the United States in 2016. She has an associate degree and is currently unemployed. She is the primary caregiver for Xiaoxie at home. Dyad six: Meisheng and Yuanyuan. Meisheng was a 4-year-4-month-old boy who was born in the United States. He was diagnosed with ASD when he was 3 years old by an early intervention program. He was receiving occupational therapy and speech therapy services under his IEP at a special education school for children aged 3 to 5 years old. His mother reported that Meisheng received about two months of behavioral intervention during an early intervention program at home. Meisheng’s mother reported that she was not satisfied with the service; she actively stopped the service because she found it unprofessional and unhelpful for him. She is currently looking for a professional ABA service for Meisheng. The parents also received ABA home-visiting services for two months from an RBT and parent training weekly via Zoom meetings, but Yuanyuan said that although they discussed a lot, they did not get any specific support to address Meisheng’s challenging behavior. Meisheng does not take any medicine currently. He lives with his father and mother, making a total of 3 people in his family. Meisheng’s mother, Yuanyuan, was a 32-year-old female who was born in China. Both of Meisheng’s parents are Chinese. Yuanyuan immigrated to the United States in 2016. She has a high school degree and is currently unemployed. She is the primary caregiver for Meisheng at home when his father is not there, but they share the responsibility for his care when his father is home. Table 2 Child Demographic Information Child Jie Yifan Zhiwei Linlin Xiaoxie Meisheng Age 4 years 9 months old 4 years 4 months old 3 years 6 months old 4 years 5 months old 4 years 7 months old 4 years 4 months old Gender Male Male Male Female Male Male REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 47 Birthplace U.S. U.S. U.S. U.S. U.S. U.S. Race Asian Asian Asian Asian Asian Asian Home language English & Mandarin English & Mandarin English & Mandarin English & Mandarin English & Mandarin English & Mandarin Diagnosis ASD ASD ASD ASD ASD ASD Diagnosed age 3 years old 2 years old 2 years old 2.5 years old 2.5 years old 3 years old Family members living with child Dad, Mom, grandparents (Mom’s parents), elder sister, Jie, young sister, Aunt (Mom’s sister) Grandma (Mom’s mom), Mom, Yifan (Dad and older brother in China) Dad, Mom, Grandma (Dad’s mom), Zhiwei, young sister Dad, Mom, Linlin, young brother Dad, Mom, older brother, Xiaoxie Dad, Mom and Meisheng Table 3 Parent Demographic Information Parent Xiaoling Minhua Xiaowei Yanting Luanhong Yuanyuan Relation with the child mother mother mother mother mother mother Age 39 37 35 38 49 32 Gender Female Female Female Female Female Female Race Asian Asian Asian Asian Asian Asian Country of Origin China China China China China China Years in US 19 11 9 16 8 8 Native Language Mandarin Mandarin Mandarin Mandarin Mandarin Mandarin Education High school Master Master Doctorate Associate degree High school Marital status Married Married Married Married Married Married Employment Unemployed Risk professional Public health inspector (now unemployed) Data scientist Unemployed Unemployed Preferred language Mandarin English or Mandarin Mandarin English or Mandarin Mandarin Mandarin Screening Measures Child Behavior Checklist. Child Behavior Checklist (CBCL, Achenbach, 1991, 2001), now called the Achenbach System of Empirically Based Assessment, the versions for preschool (CBCL/1.5–5, for ages 1.5–5) children (Achenbach and Rescorla, 2000, 2001) used in this research. The CBCL for ages 1 ½-5 is a 99-item checklist (e.g., ‘cries a lot,’ ‘hurts animals or people without meaning to,’ ‘physically attacks people’) with a three-point Likert scale (0=absent, 1=occurs sometimes, 2=occurs often) that was rated by parents to indicate the REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 48 intensity of their child’s internalizing, externalizing, and total challenging behavior (Achenbach, 1991, 2001). The parents completed the items in about 10 minutes and the optional competence items in another 5 to 10 minutes. Scores of 60 or higher on the Externalizing Score or Total Problems Score may suggest a clinically significant problem. These were the cut-off scores for inclusion in the study. Children were eligible to participate in the study provided they displayed challenging behavior as indicated on the CBCL above the cut-off scores and were between 3-5 years of age. The CBCL has adequate discriminant and convergent validity and is sensitive to changes in challenging behavior (Mansolf et al., 2022). The CBCL has been translated into Chinese versions (Su et al., 2015), which was also used for three parents. A copy of CBCL for ages 1.5–5 is located in Appendix B. All six participating mothers completed the CBCL for ages 1 ½-5 for their targeted child with the interventionist during the Zoom screening meeting, table 4 summarizes their scores. All results showed that their child had a clinically significant problem behavior except Yifan. Jie’s internalizing T-score was 70, externalizing T-score was 61, and Total Problem T-score was 70, which means a clinically significant problem behavior. Jie’s raw score on the CBCL Attention Problems subscale was a 9, which was close to the borderline clinical range. Yifan’s internalizing T-score was 56, externalizing T-score was 56, and Total Problem T-score was 58. However, Yifan’s CBCL results showed that he did not have a clinically significant problem behavior. However, Minhua reported that Yifan did have some challenging behavior at home, and Yifan’s raw score on the CBCL Attention Problems subscale was a 10, which was in the borderline clinical range. After interviewing Minhua and observing Yifan, the interventionist found that Yifan did show some external challenging behavior at home and accepted Yifan and his mother to stay in the program. Zhiwei’s internalizing T-score was 91, externalizing T-score REMOTE PTR-F WITH CHINESE AMERICAN FAMILIES OF CHILDREN WITH IDD 49 was 68, and Total Problem T-score was 90, which means a clinically significant problem behavior. Zhiwei’s raw score on the CBCL Attention Problems subscale was 13, which was in the clinically significant range, and the Aggressive Behavior subscale was 25, which was in the borderline clinical range. Linlin’s internalizing T-score was 64, externalizing T-score was 67, and Total Problem T-score was 67, which means a clinically significant problem behavior. More specifically, Linlin’s raw score on the CBCL Attention Problems subscale was a 13, which was in the clinically significant range, on the Aggressive Behavior subscale, she scored a 16, which was very close to the borderline clinical range. Xiaoxie’s internalizing T-score was 75, externalizing T-score was 68, and Total Problem T-score was 79, which means a clinically significant problem behavior. More specifically, Xiaoxie’s raw score on the CBCL Attention Problems subscale was an 11, which was in the borderline clinical range, on the Aggressive Behavior subscale, he scored a 27, which was in the borderline clinical range. Meisheng’s internalizing T-score was 93, externalizing T-score was 78, and Total Problem T-score was 93, which means a clinically significant problem behavior. Meisheng’s raw score on the CBCL Attention Problems subscale was 14, which was in the clinically significant range, on the Aggressive Behavior subscale, she scored 36, which was in the clinically significant range. Table 4 Child Behavior Checklist for Ages 1.5-5 results for each participant Participant Internalizing Externalizing Other p