DEFINING A SYNDROME OF SEVERE SYMPTOMS IN SURVIVORS OF SEVERE INCESTUOUS ABUSE Jean Goodwin, M.D., Katherine Cheeves, B.S., Virginia Connell, R.N., M.S. Jean Goodwin, M.D., M.P.H., Katherine Cheeves, B.S., and Virginia Connell, R.N., M.S. For reprints write Jean Goodwin, M.D., M.P.H., Joint Aca- demic Programs, Medical College of Wisconsin, Milwaukee County Mental Health Complex, 9455 Watertown Plank Road, Milwaukee, WI 53226. Based on a paper presented at the Fourth Annual Meeting of the International Society for the Study of Multiple Person- alty and Dissociative Disorders, Chicago, Illinois, 1987. ABSTRACT Severe symptoms are described in 10 women treated in a group for adult incest victims who had been psychiatrically hospitalized at least once. All these patients suffered at least 7 of the following 11 se-.)ere symptoms: dissociative symptoms, borderline personality dis- order, legal involvements either with family court or other law en forcement systems, substance abuse, subsequent rapes, physical abuse by sexual partners, multiple suicide attempts, affective disor- dew, multiple psychiatric hospitalizations, somatization disorder, and eating disorder. All met criteria for post-traumatic stress disor- der. Their child abuse histories were extreme. Prior surveys of child and adult survivors of incestuous abuse have tended to support the hypothesis that their symptoms represent post-traumatic sequelae (Briereuntz, 1987; Burgess Holmstrom, 1974; Goodwin, 1985, 1987a;. rman, 1981; Livingston, 1987; Meeselman, 1978; Mrazek Mrazek, 1987). As many as 80 percent of sexually abused children report some acute symptoms (Conte Schuer- man, 1987; Gomez-Schwartz, Horowitz, Sauzier, 1987). T le most commonly seen symptoms, each found in 10 to 33 percent of sexually abused children, include: 1) emotional utsetand fears, 2) regression in behavior and abandonment of former activities, 3) repressed and overt anger, 4) recur- rc, nt nightmares and 5) low self-esteem with depression. In pievious publications, the mnemonic "FEARS" has been used to designate these five types of common sequelae: 1) fears, 2) ego constriction, 3) anger dyscontrol, 4) repetitions (in nightmares or flashbacks) and 5) sadness with sleep dis- tcrbance (Goodwin, 1985, 1987a). These symptoms consti- tt: to the five cardinal signs of post-traumatic stress disorder originally described by Kardiner (1941) in shell-shocked combat veterans. In studies of adults (Donaldson Gard- ner, 1985; Herman Schatzow, 1987; Herman, Russell, Trocki, 1986; Lindberg Distad, 1985; Sedney Brooks, 1984) these five types of symptoms are each found in over half of incest victims entering treatment. The higher fre- quency of symptomatology in this adult group may result from the fact that it is the more symptomatic survivors who seek treatment; however, data from victims not in treatment also document the occurrence of these symptoms at higher frequencies than found in child populations (Herman, Russell, Trocki, 1986; Sedney Brooks, 1984). Adult incest victims complain of being hyperalert (76%) (Lind- berg istad, 1985) and nervous (63%) (Sedney Brooks, 1984); of having inhibitions around sexuality (61 to 94%) (Donaldson Gardner, 1985); of experiencing continuing anger about the incest (70%) (Donaldson Gardner, 1985) ; flashbacks (80%) (Donaldson Gardner, 1985) and night- mares (70%) (Donaldson ardner, 1985), and guilt (100%a) (Lindberg Distad, 1985) and depression (66%) (Sedney Brooks, 1984). Most adult incest victim groups (Tsai Wagner, 1978) are designed to explore these symptoms and connect them with the childhood sexual and other other abuse. The present study describes a cluster of severe symptoms found in a small sample of adult incest victims all of whom had sustained at least one prior psychiatric hospitalization. Using detailed clinical data, we explore the possibility that these severe symptoms might be sequelae of the extreme incestuous abuse which was present in all cases. Severe symptoms have been described previously in incest victims but at relatively low frequencies. In 318 chil- dren sexually abused within the past 6 months (Conte Schuerman, 1987) severe symptoms included: 1) daydream- ing with memory loss (14%) ; 2) body image problems (8%) ; 3) problemswith police (3%), and drugs or alcohol (2%); 4) age inappropriate sexual behavior (7%) and self-endanger- ing behaviors (5%); and 5) suicidal thoughts (6%), psycho- somatic complaints (10%) , and eating disorders (1%) . Adult incest victims report a higher frequency of severe symptoms with 1) 33 percent reporting dissociative symptoms (Lind- berg Distad, 1985) and 8 percent diagnosed as multiple personality disorder (MPD) Cole, 1985; Goodwin, 1987; Putnam, Guroff, Silberman, Barban Post, 1986); 2) 17 percent have borderline personality disorder (BPD) (Her- man Schatzow, 1987); 3) alcohol and substance abuse are found in 12 to 31 percent of adult victim samples (Donaldson Gardner, 1985; Herman Schatzow, 1987; Sedney Brooks, 1984); 4) rape or other crime victimization is found in 20 to 46 percent (Cole, 1985; DeYoung, 1983; Miller, Moeller, Kaufman, DiVasto, Fitzsimmons Christy, 1978; Sedney Brooks, 1984); 5) 46 to 48 percent report suicidal 11 D1SSi]t1:Vfl0N. Vol.]. No. 4: Do:umber 1 95N DEFINING A SYNDROME OF SEVERE SYMPTOMS thoug.its (Donaldson Gardner, 1985; Lindberg Distad, 1985) with 21 to 24 percent having made prior attempts (Herr tan Schatzow, 1987; Lindberg Distad, 1985), and 23 pe cent report medical problems (Donaldson Gard- ner, 1.85). P evious studies of hospitalized psychiatric patients also descri e a sub-group of incest victims with severe symptoms. LivinSston (1987) found prior sexual abuse in 13 of 100 conse :utive admissions to a child inpatient unit; these chil- dren ere more likely than either physically abused or non- abuse inpatients to have psychotic symptoms, major de- pressi >n and somatic complaints. Kohan and co-workers (19871 found sexual and violent acting out in over 50 percc t of child inpatients with sexual abuse histories. Howe ,er, Emslie and Rosenfeld (1983) found no direct effect. of incest in psychotic child inpatients. Goodwin and co-wo kers (1987) found prior sexual abuse in half of 40 adult ernale inpatients. The half of the sample with prior sexua abuse contained all the patients with current family viole ce problems and all with diagnoses of substance abuse, explo we disorder, and multiple personality disorder. Rieker and C rrnen (1985) found increased suicidal behavior in the 20 pe cent of adult inpatients who reported sexual abuse in child ood. Inpatients with both physical and sexual abuse in child ood were most likely to have harmed themselves (30% ,followed by the sexual-abuse-only group (20%),then the p ysically abused group (14%), and the non-abused grou (10%). Ts explore the severe symptoms clustering in the 10 patie is in this study, detailed clinical data were collected regar ing a) post-traumatic symptoms, h) severe symptoms and c childhood experiences of physical and sexual abuse. MET ODS T e present study describes 10 consecutive members of a 12- eek incest victimsgroup for survivors who had also sustai ed at least one psychiatric hospitalization. Included are all individuals who participated in at least one group meet" g. This group was designed to provide services to victin s who might be "screened out" of other survivor grou s in the community which are volunteer-led support grou s. entry, group members completed 1) a symptom onnaire (Kellner, 1987), which produces scores for depression, somatization and hostility, 2) a sexual screening questionnaire (Goodwin, McCarty, Di- 1982) and 3) checklists for somatic symptoms, disso- experiences and family violence experiences. Hospi- rts and transcripts of group meetings were reviewed. RES LTS e 10 incest survivors ranged in age from 31 to 47. All upported by disability income. Five had high school tion only; five had some college in addition. Five were ed, three single, and two married. Three lived with partners and each of those three had a child in the (one had relinquished parental rights but lived in an extended family arrangement with the adoptive mother of this child; both other mothers had regained custody after the child had been placed by protective services). POST-TRAUMATIC SYMPTOMS Although none had been diagnosed previously as hav- ing post-traumatic stress disorder, the 10 victims in this sample met criteria, and manifested extreme forms of the post-traumatic symptoms previously reported in incest survi- vors. Fear and Anxiety. Eight of the 10 scored as anxious on the Symptom Questionnaire. Five of the 10 described barricad- ing themselves in their blacked-out rooms at times when they were frightened of men. Ego Constriction-Sexuality. All 10 had at least one sexual dysfunction. Four were anorgasmic. Two were unable to tolerate certain sexual practices-one kissing and one the inferior position in intercourse. Three had sought sexual relationships with women because of orgasmic difficulties with me. One with multiple personality disorder was orgas- mic only in a highly sexualized alter identity. Two practiced compulsive masturbation-up to 70 times per day-with various objects including toothpaste tubes, brooms and bottles.One had "flashed" men, opening what she described as a "ruin s costume" to reveal her naked body. An-gcrDyscontrol.All 10 had high hostility as measured by the Symptom Questionnaire. Four had detailed plans to murder their primary incest perpetrator. Repetitions. All 10 had waking flashbacks to the sexual abuse. Visual, olfactory and auditory flashbacks were present and were often identical with recurrent nightmare images. Six of the 10 had complained of hearing voices; all heard the perpetrator; some heard other voices as well. One victim description is typical:" Its like my father s beside me again telling me to commit suicide."? Sadness. Nine of the 10 scored as significantly depressed on the Symptom Questionnaire. One group member articu- lated the universal problem of self-esteem: "I feel I ll go crazy if I don do something about my bad feelings about myself." SEVERE SYMPTOMS Fugues and Other Dissociative Symptoms. All 10 had at least one major dissociative symptom. One was diagnosed as having multiple personality disorder; her many symptoms are not included in the tallies below. One was diagnosed as having a fugue; she had found herself inexplicably in a foreign county. Seven had trancelike episodes. Four had no memory for important life events. Three had prominent imaginary playmates persisting into late adolescence: two had named childlike playmates that they conversed with; the third had a "little man," three inches high, who she "kept in her pocket." Two had perplexing people, places, and posses- sions," that is, the recurrent experience of not recognizing persons, places or objects which circumstances indicated should have been familiar. Four were able to ignore pain; these four were also repetitive self-cutters. Two used differ- ent names in the group. One had recurrent episodes of quest anxie abuse vasto, ciativ tal ch were ethic divor male hom 12 DISSOC11TION. Vol. 1. No, I: Dsremhrr 1988 be ieving she was Marilyn Monroe. One had episodes of "f:eling seventeen years old or form." Ego Splitting with Borderline Ego Pathology. Nine of the 10 ha been diagnosed as having borderline personality disor- de -. Of these nine, eight had greater than 5 hospitalizations, se en did repetitive self-cutting and seven had eating disor- de s. Antisocial Behaviors. This terra is used descriptively as nc e of the victims met criteria for antisocial personality di order. All six victims with children had lost custody of th rr children, five with protective serv th ~ ee permanently. Parenting problems included neglect in us" cases, abandonment in two, and physical abuse in two ca: es (e.g., "I threw my three year old into a wall and he hit hi. head on the bathtub." Five had other legal involvements including arrests for prostitution (three had had venereal di aces); drug possession, shoplifting, vandalism and dis- tu bing the peace. Seven had alcohol abuse diagnoses and all seven had other polydrug abuse; six had been hospital- iz with a primary substance abuse diagnosis. Reenactments. All 10 had been raped subsequent to their infest victimization. Three had been raped once, 3 twice, 2 th ee times and 2 four times. One rape had led to criminal co viction of the perpetrator. One rape resulted in preg- na icy and stillbirth. Five had been sexually abused by some- on in a care-taking or authority role: two by policemen, one by a teacher, one by a family physician, and one by a therapist. The vulnerability of incest victims to sexual abuse by therapists had been previously described by DeYoung (1 83). Two women had reported rapes to the police only to le. rn later that they had invited the man involved to a sexual en -ouster but had dissociated this; this phenomenon has be -n reported previously in patients with dissociative disor- de s (Goodwin McCarty, 1985; Schafer, 1986). Seven had be -n physically abused by sexual partners. In four women th had occurred with more than one partner. Two cases in olved death threats and weapons. In one of these cases the husband harangued the wife about her incest experi- en es during beatings; in the other extreme case the hus- ba id inserted objects into the wife vagina during beat- in s-she was one of the two women in the sample to ex.erience a bone fracture secondary to spousal abuse. Suicidality and Sornatization-: All 10 had attempted sui- ci. e; nine had made more than one attempt. Nine had taken m ltiple overdoses; seven practiced self-cutting; four prac- tic s head-banging or hand-banging (one had broken her ha d in this way); three pulled out hair or peeled off skin. All 10 had been diagnosed as having a major affective di order. Six had been diagnosed as depressed, two as sc izoaffective, and two as having atypical affective disor- de s. All 10 were taking antidepressant and/or mood stabi- liz ng medication at entry to the group. All had undergone m re than three psychiatric hospitalizations. Nine of 10 had multiple somatic complaints as meas- ur d by the Symptom Questionnaire. Eight metOthmer and DSouza criteria for Somatization Disorder (1985). Nau- se and vomiting, and fainting were the most common ptoms, occurring in seven patients. Two women re- ted prior conversion disorders; both had experienced blindness and paralysis. Two reported prior seizures; both pseudoseizures and neurological seizures have been re- ported in incestvictims(Goodwin, Simms, Bergman, 1979; Goodwin, 1987). Four of the 10 had been diagnosed as having endocrine disorders: two thyroiditis, one hypothy- roidism and one hyperprolactinemia. Two were taking medication for asthma and two for seizures. Two had under- gone multiple knee surgery. In all, 8 of the 10 were taking medication for non-psychiatric diagnoses. Seven of the 10 had been diagnosed as having an eating disorder; three had bulimia with obesity; two had bulimia; two had bulimia with anorexia. Two others had episodes of fasting and vomiting which had not been diagnosed as an eating disorder. Two of the bulimics and both of the anorex- ics had been hospitalized for the eating disorder. CHARACTERISTICS OF CHILDHOOD ABUSE All 10 had sustained intrafamilial sexual, physical and emotional abuse and all 10 had witnessed other family members being physically abused. In all 10 cases there were multiple sexual abusers in childhood. Natural families were involved in all except one case which involved the foster family with which the woman lived from age two to nine. Father and brother or brothers were involved in eight cases; in three of these situations, additional perpetrators were named as well (cousin; uncle and mother; and brother friends). In two cases an uncle was the primary sex abuser with non-family members sexu- ally abusing as well. In all 10 cases vaginal intercourse took place; oral intercourse was present in 8 cases; and vaginal insertion ofobjects was afeature of2. Nine of the 10 were age eight or younger at the onset of the intrafamilial sexual abuse; the tenth patient was sexually abused by a neighbor at age five, but was twelve when sexual abuse began with her uncle. Total duration-adding the duration with all intrafa- milial abusers-was over five years in 9 of the 10. All 10 felt their mothers had failed to protect them. The spectrum of mother s involvement included: 1) participation in the sex- ual abuse, in one case; 2) participating in physical abuse by the sexual abuser, one case; 3) watching the sexual abuse, two cases; 4) instructing the daughter to keep the secret, one case; 5) blaming the daughter when told, one case; and 6) doing nothing when told, four cases. Protective services were involved in one case; in one other case disclosure was made to a therapist who did not report. However, although only one was removed from home by protective ser v others left home prior to age 16 as runaways. Six of the 10 identified other sexual abuse victims in the family. All 10 were physically abused in childhood. In two cases beating and choking were part of the sexual abuse. Two were kicked; eight were beaten with objects; two were threatened with knives or gulls. The one patient who was sexually abused in foster care had been placed after being found abandoned in an alley. All 10 had witnessed other family members being beaten. In nine of these parental fights were prominent, as: "He used to rape her anally and then beat her with a strap. " In the tenth case, a brother had murdered the physically abusive 13 DISSOCIATION, Vol. I. No. S: I)rrrmhrr 1988 DEFINING A SYNDROME OF SEVERE SYMPTOMS father. Ai 10 reported "yelling and screaming " at home, Nick- name; in childhood included "ugly," "filthy," "prick tease" and ":at ass." In 8 of 10 cases one or both parents were alcoholic; seven fathers and four mothers were alcoholic. One patient reported alcoholism in four generations of family women ranging from her great-grandmother to her- self.Two fathers and one mother were psychiatrically hospi- talized for paranoia or depression. DISCUSSION T le 10 women seen in this group experienced post- traumatic symptoms as usually found in adult survivors hut in mo -e extreme forms. However, their clinical courses were dominated by five additional groupings of more severe symptoms. These more severe findings included: 1) dissocia- tive symptoms (10:10); 2) borderline personality disorder diagnoses (9:10); 3) legal problems including child custody matters or arrests (all six with children had lost custody of the child at least temporarily) and other antisocial behaviors inelucing alcohol and substance abuse (7:10); 4) revictimi- zation in the form of subsequent rapes (10:10) and physical abuse by sexual partners (7:10); and 5) multiple suicide attem its (9:10) and somatic symptoms. All 10 had been diagnosed as having major affective disorder, and all had had nultiple (three or more) psychiatric hospitalizations. Eight of 10 had multiple somatic symptoms, and seven had diagnosed eating disorders. All 10 survivors in the group had at least seven of these 11 severe symptoms. I .vould suggest a second FEARS mnemonic for these severe symptoms: 1) Fugues and other dissociative symp- toms; 2) Ego splitting and disintegration (borderline per- sonali_y disorder); 3) Antisocial acting out (arrests, abuse of own children, alcoholism or substance abuse); 4) Reenact- ment of the abuse (rape, battering); and 5) Suicidality and Somalization (including mood disorder, multiple hospitali- zation, eating disorder). The child abuse histories were extreme in these cases. Abuse was multimodal including sexual, physical, and emotional abuse as well as witnessed violence. The sexual abuse was severe involving penetration and multiple part- ners in all cases. Age at onset was early, duration was long, maternal protection was not available. Previous studies have reported associations between these indices of severity of incestuous abuse and the severity of later symptoms (Good- win, McCarty DiVasto, 1982; Goodwin, Attias, McCarty, Chandler, Romanik, 1987; Herman, Russell, Trocki, 1986). In group psychotherapy there were indications that certain of the severe symptoms usually considered part of borderline personality disorder (BPD) were integrally re- lated to prior abuse. Previous studies have reported a 30 to 70 percent frequency of prior incest in patients with BPD (Herman Van der Kolk, 1987; Salzman Solomon, 1982; Schultz, Kluft, Braun, 1986). Both homosexuality and paraphilias are found with six-fold higher frequencies in women with borderline personality disorder (Zubenko, Anselm, Soloff, Schulz, 1987); in this group extreme sexual behaviors appeared to be related to the sexual dys- function aspect of their post-traumatic disorder, Self-mutila- tion may be another borderline symptom which can be linked to prior child abuse. Three of the self-cutters in our group also described detailed revenge plans to stab the incest perpetrator. Two found themselves frequently hold- ing knives with amnesia for how this had happened. Two described the self-cutting as a way" to keep bad memories away." One patient with multiple overdoses had been chemi- cally abused from infancy by her substance abusing mother. Eating disorders have been reported previously in pa- tients with dissociated traumatic experiences involving eat- ing (Torem, 1986). Five of the seven survivors in this group diagnosed as having eating disorders related their habitual vomiting to oral sex. "If I could get the semen out of my stomach Id feel better." "I have the feeling of the penis in my mouth all mixed up with food." " When I self-induce vomit- ing its like my father s right behind me pressing against me." "It like I pretending I purging all over him."? It is perhaps expectable that multiple and extreme symptoms would be associated with multiple and extreme environmental risk factors. More research is needed to document the link found in this small sample between severe symptoms and prior extreme incestuous abuse and to determine whether treatment focussed on the child abuse can mitigate the disabling severity of these problems. 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