MULTIPLE PERSONALITY DISORDER AND THE SOCIAL SYSTEMS: 185 CASES Margo Rivera, Ph.D. Margo Rivera, Ph.D., is Director of Education/Dissociation, The Muskoka Meeting Place for Counseling and Education, Gravenhurst, Ontario, Canada. For reprin ts write Margo Rivera, Ph.D., The Muskoka Meeting Place for Counselling and Education, Box 2242, Graven hurst, Ontario, POC IGO, Canada. This article is based on a paper presented at the Seventh Annual International Conference on Multiple Per- sonality/Dissociative States, Chicago, November 10, 1990. ABSTRACT A survey of 185 individuals in treatment for multiple personality disorder regarding their involvement with the mental health and social service systems documents the high level of social resources these individuals use as a result of their post-traumatic symptoma- lology. The data point to the cost effectiveness of accurate diagnosis and effective treatment of multiple personality disorder. INTRODUCTION In the last fifteen years sincethe second edition of the Comprehensive Textbook of Psychiatry (Freedman, Kaplan, Sadock, 1975) declared incest to occur in one person in a million in the general population, there has been growing knowledge about the high incidence of child sexual abuse in North America (Rush, 1980; Badglev, 1984; Finklehor, 1984; Russell, 1986). During the same time period, clini- cians have become increasingly aware of the use of dissoci- ation as a defence by a great many victims of severe child abuse (Putnam, 1985; Putnam, Guroff, Silberman, Barhan, Post, 1986), and there has been an exponential increase in suspected incidence of multiple personality disorder. In the 1950s, Chris Sizemore ("Eve" of The Three Pares of Eve [Thigpen Cleckley, 1953]) was said to be the only case of multiple personality in the world. In the mid-1980s, Coons (1985, 1986) estimated that " a minimum of six thousand cases of multiple personality may be occurring nationwide." Recently, researchers conducting the first systematic inci- dence studies of dissociation and multiple personality dis- order found that one in one hundred people in the gener- al population endorse the symptoms of multiple personality disorder as defined by the D.SAI III-H, and in certain clinical populations such as incest sunivors, substance abusers, and psychiatric inpatients, the incidence is much higher (Ross, 1 991). As increasing numbers ofclinicians treat individualswith MPD, a large body of oral testimony has developed about the positive prognosis that a great many of these individu- als have for complete cure, or at least substantial alleviation of their debilitating symptomatology, when they receive appro- priate treatment. The literature documents many case stud- ies and some preliminary outcome data (Kluft, 1986b) that confirm the widespread clinical impression that MPD is the most severe psychiatric condition with a highly posifive prog- nosis if appropriate treatment is available, undertaken, and completed. Individuals who suffer from multiple personality disor- der usually exhibit a wide array of symptomatology that per- meates their past and their present life. Suicidal depression, severe somatic complaints, amnesia, self mutilation, passive- influence phenomena, fugue episodes, unstable personal relationships, sleep disturbances, nigh tm~u es, flashbacks, sex- ual difficulties, intense dysphoria, and dramatic swings in affect and behavior are among the many symptomsof this post-traumatic condition (Putnam, 1989; Ross, 1989b). Though some individuals with multiple personality disor- der are consistently high-functioning (Kluft, I986a), a more common pattern is inconsistent orconsistentlycompromised personal, social, and professional competence. Their symp- tomatology leads many individuals with multiple personali- ty disorder to seek help from the mental health system, and they usually share a long psychiatric history (average of 6.8 years) (Putnam, et al., 1986; Ross, 1989a; Rivera, 1991) of multiple diagnoses and non-responsiveness to the usual treat- ment for these diagnoses before they are eventually accu- rately diagnosed as suffering from multiple personality dis- order. There is also general agreement in the literature that the appropriate treatment for MPh is a regimen of intensive psychotherapy (Braun, 1986; Putnam, 1989; Ross, 1989a). The main work of the therapy is the strategic uncovering and reworkingof the history of experiences of trauma. When the traumas (which are sequestered in disaggregate self states called alter personalities [Kluft, 1988]) are remembered, abreacted, and cognitively reprocessed, the defensive dis- sociative barriers between the states are gradually eroded. The result is the development of a continuity of conscious- ness and new, non-dissociative coping skills. This positive outcome is referred to as personality unification, fusion or integration. The process involves commitment by the indi- vidual with multiple personality disorder to a rigorous and 79 DISSOCIATION. Vol. IV, No. 2, June 1991 MPD AND THE SOCIAL SYSTEMS: 185 CASES often painful treatment which is almost always long-term, encompassing three to five years (Putnam, 1989) or more of therapy. This increase of awareness about both the prevalence of child abuse and severe dissociative disorders, including multiple personality disorder, and the responsiveness of dis- sociative conditions to appropriate treatment, raise critical social policy issues. One of the most basic of these is the cost of treating this condition. In a time of recession, as both the public and private sectors attempt to exercise fiscal restraint, how are the health care systems to respond to reports of a disorder that demands intensive and necessarily costly treatment? Though stories of individuals suffering from severe, debilitating, and often life-long symptomatology being completely healed, with the consequent increased level of psychological and social func- tioning, are heartening and sometimes inspiring, do we, as a society, have the resources to offer treatment to a wide cross-section of the population suffering from multiple per- sonality disorder? Is treating MPD cost-effective? A study, conducted by Education/Dissociation (a com- munity education program funded by Health and Welfare Canada) , offers data to address this important question. This study involved 185 individuals in treatment for multiple per- sonality disorder with a variety of mental health and social service systems before they were accurately diagnosed and appropriately treated. The results of the study indicate that it is much more expensive not to treat individuals with mul- tiple personality disorder effectively than it is to treat them. METHODS Seven hundred (700) questionnaires were distributed at a conference held in Toronto, Ontario, for professional training in treatment of multiple personality disorder and dissociation. They elicited information about the childhood abuse history of individuals in treatment for MPD and their past and present involvement with mental health and social services systems. In addition to a variety of workshops for the professional development of service providers, an edu- cational forum for individuals suffering from multiple per- sonality disorder was facilitated during the conference. Questionnaires were included in all conference packets, with instructions that they could be completed by practitioners treating individuals with multiple personality disorder or by individuals with NiPD themselves. One hundred and eighty-five (185) questionnaires were returned with complete data. Seventy-five (75) individuals in treatment for multiple personality disorder attended the educational forum; 72% (n=54) returned completed ques- tionnaires. Of the 625 professionals registered for the con- ference, 282 indicated on their registration forms that they had seen, assessed or treated an individual with MPI) in a professional setting. Forty-seven (47%) percent (n=131) of the registrants who were aware of having had professional contact with an individual suffering from MPD returned com- pleted questionnaires. Some of these professionals had client contact that was minimal and therefore were clearly not privy 80 to the detailed information that would enable them to fill out the questionnaire. Therefore the exact return rate for qualified professional recipients cannot be determined. Professionals in the following disciplines returned completed questionnaires: social workers (35%); psychologists (22%); and medical doctors-mainly psychiatrists (21%). The remaining 22% represented a variety of disciplines, includ- ing nurses and pastoral counselors. There were no significant differences in any area between the data from therapists about their clients and the data from individuals with multiple personallity disorder about their own histories, an interesting finding in itself. FINDINGS Ninety-two percent were female (average age 33.5 years); 8% were male (average age 28 years). Eighty-nine percent experienced physical abuse in childhood; 98% sexual abuse; most experienced both physical and sexual abuse. Thirty-six percent disclosed their abuse in childhood. Disclosures were made to parents (48% of the 36%), child welfare agencies (38%), police (18%), a teacher (15%), a friend/neighbor (12%), pastor (9%), doctor (6%). In 77% of the cases in which abuse was disclosed, no protective action was taken, and the most common reactions were (1) being called a liar, (2) being beaten, and (3) being disbelieved. Eighteen percent of the children who disclosed abuse were removed from their homes. In one case, the abuser was jailed, and in another case, the abuse stopped although both the victim and the abuser remained at home together. Of the entire sample (185), 19% were involved with the child welfare system as children, and 15% as adults regard- ing their own children. Fifty-seven percent of the entire sam- ple had problems with drug abuse. Of those who abused drugs, 33% reported abusing both prescription and illegal drugs. Twenty-eight percent used prescription drugs only, and 39% illegal drugs only. Fifty percent of the sample abused alcohol. Twelve percent had a criminal record. Fifty-five per- cent had been on social assistance due to their inability to work consistently because of their dissociative symptoma- tolo v. Eleven percent had never been in treatment before receiv- ing the diagnosis of multiple personality disorder. The involve- ment of the remaining 89% with the mental health system was extensive, with an average of6.8years ofpsychiatric inter- vention before the diagnosis of multiple personality disor- der and the commencement of effective treatment. Seventy- three percent had received diagnoses that they were able to list for the study. They received an average of three diag- noses each, and a total of forty-six different diagnoses were reported altogether, most frequently, Depression (46%), Borderline Personality Disorder (37%), and Schizophrenia (33%). They were hospitalized for psychiatric symptoms an average of four times each (see Table 1). DISCUSSION Two studies, one completed at the Royal Ottawa Hospital DISSOCIATION, Vol. (Fraser & Raines, 1990), and the other at St. Boniface Hospital in Winnipeg (Ross & Dua, in press) documented the life- time psychiatric health care costs for two small cohorts of patients eventually treated for multiple personality disorder. Their findings are most relevant in connection with the high use of social resources documented in this survey. Both stud- ies found that millions of dollars had been spent by the men- tal health systems on ineffective and counterproductive treat- ment and hospital care before diagnosis. Both studies also found that while, in some cases, the treatment costs increased for a time after the commencement of intensive psy- chotherapy for MPD, a significant cost saving was effected in a very short time, and those who completed treatment left the mental health system for the first time in their lives (Fraser & Raines, 1990; Ross & Dua, in press). These two studies documented the psychiatric health care costs of undiagnosed, untreated multiple personality disorder. Add to these the cost of drug and alcohol abuse treatment, social assistance payments to individuals unable to work consistently prior to the completion of appropriate treatment, child welfare and legal justice costs documented by the Education/Dissociation study "Multiple Personality and the Social Systems," and it becomes clear just how expen- sive it is to allow thousands of individuals with histories of prolonged childhood abuse and severe dissociative symp- tomatology to go undiagnosed and untreated. These are only the financial costs, the tax dollars squan- dered. The personal suffering and the waste of human poten- tial that is represented by each individual who remains untreat- ed for many years because mental health and social service personnel are not trained to recognize their problem is incal- ports and services that they must utilize as a direct outcome of their condition. REFERENCES Badgley, R. (1984). Ottawa, Ontario: Canadian Government Publishing Centre. Braun, B. (Ed.) (1986). Treatment of multiple personality disorder. Washington, DC: American Psychiatric Press. Coons, P. (1985). Letter to the editor. Newsletterof theSocietyfor Clinical and Experimental Hypnosis, 26, (2),2. Coons, P. (1986) . The prevalence of multiple personality disorder. Newsletter International Society fir the Study of Multiple Personality and Dissociation,4, Fall, 6-7. Finkelhor,D. (1984). Child sexual abuse: New theory and research.New York: The Free Press. Fraser, G., & Raines. Cost to health care system pre and post diagnosis of multiple personality disorder: Is there a difference? Paper presented at the Seventh International Conference on Multiple Personality/Dissociative States, Chicago. Freedman, A., Kaplan, Comprehensive textbook of psychialty(2nd ed.). Baltimore: Williams and Wilkins. Muff, R. P. (Ed.)(1985) Childhood antecedents of multiple personality. Washington, DC: American Psychiatric Press. Kluft, R. P. ( I986a). High-functioning multiple personality patients. Three cases.journal of Nervous and Mental Disease.174, 722-726. culable. There is no doubt that both psychothera- peutic treatment forindi- vidualswith multiple per- sonality disorder and training for profession- als in the health, mental health, social service and education systems so that they can recognize and treat severe dissociative disorders are exception- ally cost-effective. In summary, individ- uals who suffer from MPD as a result of a childhood history of trauma use high levels of social resources as a result of their post- traumatic syrnptomatol- ogy. Though providing them with effective treat- ment is expensive, it is a great deal less costly than continuing to allow them to remain undiagnosed and untreated and paying for all of the social sup - TABLE 1 Involvement in Social Systems Social Assistance/Welfare 55% Child Welfare 19% As adult 15% Criminal Record 12% Mental Health System 57% Drug Abuse * Alcohol Abuse 50%o Previous Psychiatric Treatment 89% Additional findings: Average of Four Psychiatric Hospitalizations Each Average of 6.8 Years in Treatment Before Accurate Diagnosis Average of Three Previous Diagnoses Each Most Common Diagnoses: Depression Borderline Personality Disorder Schizophrenia 81 DISSOCIATION, Vol. IV. No. MPD AND THE SOCIAL SYSTEMS: 185 CASES Kluft, R. P. (1986b). Personality unification in multiple personal- ity disorder: A follow-up study. In B. Braun (Ed.). Treatment of mul- tiple personality disorder (pp. 31-60). Washington, DC: American Psychiatric Press. Kluft, R. P. (1989). 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