A History of Muscular Dystrophy: The Biosocial Nature of Disease

dc.contributor.advisorValiani, Arafaat
dc.contributor.advisorConnolly, Amy
dc.contributor.advisorPrazniak, Roxann
dc.contributor.authorChambrose, Starla
dc.date.accessioned2021-07-27T18:44:25Z
dc.date.available2021-07-27T18:44:25Z
dc.date.issued2021
dc.description54 pages
dc.description.abstractMuscular dystrophy (MD) is one of the most frequently inherited diseases, yet few science, technology, and society (STS) scholars have attempted to study it. In particular, there is a significant gap in the literature regarding how sociocultural contexts have shaped biomedical perspectives on the disease. Therefore, this thesis adopts Paul Rabinow’s notion of biosociality and traces the history of muscular dystrophy to draw conclusions about how and what kinds of knowledge about MD are produced as biological fact. The first chapter, which analyzes early descriptions of muscular dystrophy, demonstrates that modern perspectives on correct ways of knowing in turn influence who scientists credit with “discovering” MD. Similarly, the second chapter reveals how diagnostic technologies help define the boundaries of disease. Ultimately, this thesis serves as a case study to prove that science does not stand apart from culture; indeed, it is profoundly shaped by “the social.”en_US
dc.identifier.orcid0000-0003-1714-6439
dc.identifier.urihttps://hdl.handle.net/1794/26503
dc.language.isoen_US
dc.publisherUniversity of Oregon
dc.rightsCC BY-NC-ND 4.0
dc.subjectMuscular dystrophyen_US
dc.subjectScience, technology, and society studiesen_US
dc.subjectBiosocialityen_US
dc.subjectDisease discoveryen_US
dc.subjectDiagnosticsen_US
dc.titleA History of Muscular Dystrophy: The Biosocial Nature of Disease
dc.typeThesis/Dissertation

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