Down Syndrome and Congenital Cardiac Anomalies: A Quality of Life Assessment
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This thesis investigates the impact of congenital heart defects on the quality of life of individuals with Down syndrome through researching morbidity and mortality. The assessment includes information relating to the relative rates of morbidity and mortality, ethical considerations, and associated maternal outcomes. The purpose of this work is to create a consultation tool for parents expecting a neonate with both Down syndrome and a cardiac anomaly. Through my research I hope I can assist parents to make informed decisions regarding their child's medical care and future. Additionally, I would like to aid practicing physicians by generating readily available and accessible literature that discusses the modem implications of Down syndrome when it is compounded by a congenital heart defect.